tmlovett's Journey with Skin Cancer - Melanoma

Patient: Skin Cancer - Melanoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 13 years ago, Female, Age: 36, Stage IV, BRAF mutation positive: No, c-kit positive: No

  1. 1
    • tmlovett
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
    tmlovett's Avatar

    Sentinel lymph node biopsy

    Procedure or Surgery

    Sept. 2003 - Original melanoma removed w/ node biopsy. Learned the hard way that I do not tolerate anesthesia or pain medication.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  2. 2
    • tmlovett
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
    tmlovett's Avatar

    Cancer has spread/Metastasized

    Oh No

    January 2011 - I found a small "lump" on my back/shoulder blade and knew it wasn't normal. Come to find out it was my Melanoma, spread to my lymph from my original site on my R leg

    0 Comments
  3. 3
    • tmlovett
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
    tmlovett's Avatar

    Surgery to remove cancer that has spread

    Procedure or Surgery

    March 2011 - Melanoma returns to Lymph node in R axilla. Undergo 4 different procedures during the month of March in order to remove all cancer in the area.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  4. 4
    • tmlovett
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
    tmlovett's Avatar

    Pregnant!

    Celebration

    May 2011 - Found out we were expecting baby #2!!

    0 Comments
  5. 5
    • tmlovett
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
    tmlovett's Avatar

    Cancer is back/Recurred

    Oh No

    October 2011 - 6 months into my 2nd pregnancy I find 4 more tumors

    0 Comments
  6. 6
    • tmlovett
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
    tmlovett's Avatar

    Surgery

    Procedure or Surgery

    October 2011 - after finding 4 new cancerous tumors (while prenant), I undergo surgery for resection. End up in the ER that night due to severe dehydration that acted like pre-term labor.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  7. 7
    • tmlovett
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
    tmlovett's Avatar

    Birth

    Celebration

    December 31, 2011 - We welcome our 2nd child!

    0 Comments
  8. 8
    • tmlovett
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
    tmlovett's Avatar

    Immunotherapy

    Drug or Chemo Therapy

    Feb 2012 - 5 weeks after the birth of my 2nd child, I started my 4 treatments of Ipilimumab. Minimal side effects for me, only increased fatigue the day of infusion.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  9. 9
    • tmlovett
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
    tmlovett's Avatar

    External radiation

    Radiation

    July 2012 - Do one round of 5 radiation treatments focused on 1 tumor. Very frustrating because of the time commitment to be there and lack of results.

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  10. 10
    • tmlovett
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
    tmlovett's Avatar

    Chicago Marathon!

    Celebration

    Oct. 7 2012 - Right after having Baby #2 and just starting my infusion treatments, I decided to sign up for the Chicago Marathon. It was a great way to focus my stress and energy during treatment (and lose the baby weight!). My sister ran with me and we ran for the American Cancer Society! We were the #1 fundraising team too! This was a HUGE accomplishment and a wonderful experience!

    0 Comments
  11. 11
    • tmlovett
    • Experience with Skin Cancer - Melanoma
    over 4 years ago
    tmlovett's Avatar

    Right Ovary and Tube excision

    Procedure or Surgery

    Nov. 1, 2012 - After getting a better report on my latest PET/CT, there was one thing lingering in my Uterus, or so they thought. Upon further imaging it turned out to be a mass in/on my right ovary. That US was on a Monday, surgery was that Thursday. The mass was Melanoma and there was another spot on my Left ovary that was also Melanoma.

    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  12. 12
    • tmlovett
    • Experience with Skin Cancer - Melanoma
    about 4 years ago
    tmlovett's Avatar

    Immunotherapy

    Drug or Chemo Therapy

    Dec 17 2012 - Started my second round of Ipi (Yervoy) for the course of 4 infusions, 1 every 3 weeks.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  13. 13
    • tmlovett
    • Experience with Skin Cancer - Melanoma
    almost 4 years ago
    tmlovett's Avatar

    To continue with treament or not

    Decision Point

    Time to decide if I sign up for the PD-1 clinical trial or just be done with treatment.

    0 Comments
  14. 14
    • tmlovett
    • Experience with Skin Cancer - Melanoma
    almost 4 years ago
    tmlovett's Avatar

    Port Placement

    Procedure or Surgery

    March 16, 2013: Port placed to receive more treatment and blood draws

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  15. 15
    • tmlovett
    • Experience with Skin Cancer - Melanoma
    almost 4 years ago
    tmlovett's Avatar

    Merk PD-1

    Clinical Trial

    Start May 20, 2013

    0 Comments
  16. 16
    • tmlovett
    • Experience with Skin Cancer - Melanoma
    about 3 years ago
    tmlovett's Avatar

    complete hysterectomy

    Procedure or Surgery

    September 2013 - After months of issues with my cycle and chronic pain, it was finally decided that a hysterectomy was the best option. They encountered more bleeding than expected during the procedure and so I ended up with 3 scope incisions as well as a 4-5inch incision on my abdomen.

    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments