JoLoaretti's Journey:

Spouse/Partner: Leukemia

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: about 8 years ago, Male, Age: 46

  1. 1
    over 4 years ago
    JoLoaretti's Avatar

    External radiation

    Radiation

    it is what is giving us more time, seems to have halted the growth, but he can not have any more, lots of burns on his body

    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  2. 2
    over 4 years ago
    JoLoaretti's Avatar

    WEDDING dreams came true after cancer

    Celebration

    My husband & I met after his 1st bone marrow treatment for AML, I often say Cancer is a gift that teaches us how to really live. we both had been blessed, our dreams came true after David had already almost died, it was like a second chance, we got married at a Relay for life Cancer walk put on by the American Cancer society, this is our community ...the people we fight cancer with, the people who support us as we go though all the steps, the people who we celebrate our success with. we broke a world record for having the most bridesmaids to one bride, I had nearly 200 people walk me down the isle to my groom, they all wore different colors representing all of the cancer awareness ribbons, that year ACS slogan was "more birthdays" we just ask if we could add to that with , more weddings, more anniversaries, more births more babies more birthdays...full circle, we participate in as many Relays as we can, we are known as Mr & Mrs Relay, we both also just became volunteers for 'be the match" that is the origination that found David a match, we need to get more people on the list especially minority s, I just beg, if you have been given the gift of more time with a loved one that you share the success & let everyone know it takes a community. have everyone you know get on that list & help try & save more lives, we just celebrated our 1 year anniversary at the relay for life in Ventura and dispite him doing a 2nd BMT this year we have been to4 others all over California, if you have not yet been look one up, they are EVERYWHERE, & it is the people there that helped me survive being a caregiver. I was blessed, it is a wonderful community, I hope you utilize it for the support

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  3. 3
    over 4 years ago
    JoLoaretti's Avatar

    Cancer is back/Recurred

    Oh No

    My husband has AML, his 1st diagnosis was in 2009 in May, he was very luck and found an unrelated match and had started his 1st bone marrow transplant on the 23 of December that year, I met hi 6 months later & we were married 11 months after that at The Ventura Relay For Life, a cancer walk put on by the American cancer society, My husband was the 1st Survivor ever to get married at one of these events, as we walked our 1st lap as man and wife David was having some weird pain in his femur, and for the next 6 months we were told its leukemia & it is back...and then that it was not then it was ....drum roll it is back and doing stuff no-one at City of hope is familiar with, my husby is an innovator, the bad cells are showing up in his bone, but NOT In his bone marrow, however being a blood disease it will get there so we prepared for a 2nd BMT, loads more radiation, which stopped the pain followed by 2 huge inductions of Chemo and finally new marrow again, everything seemed great, hair is coming back he is starting to feel ok again.......and not even 100 days out the leg pain came BACK....................ugh MRI shows the same intensity as before the treatment, but it does not seem to be moving quickly right now , our doctor suggested more chemo once we got out of the 100 days post trasplant, David questioned why....if we just did all that chemo followed by a 2nd BMT & it looks no different why keep blasting me, there really is not a further treatment plan as of right now. he can not have any more radiation, he has had the maximum allowed for the human body... this is where I questioned the doctor... if the leukemia is going to kill him & be a painful death, & the radition will kill him, but make him not have that horrible bone pain, then why cant we just choose radiation at least then it wont be so painful, you just cant do it that way, what if he miraculously survived the AML then had residual effects from the radiation...there is a protocol to follow. so we just live in the moment we have now, we deal with all the stuff the treatments & the drugs have done to his body, we just ask about getting something like Viagra, and our wonderful nurse realized we should have his testosterone checked, the 2nd bmt really does a number on your hormones, thatnk goodness we are newleyweds & wanting that passion back, I wonder how long till the doctors thought to check that.... it effects so much more than just his libido, he has no muscle tone in his arms or legs so everything is more of an effort, everything turns into belly fat so he looks a bit like bullfrog, but you know what he is alive.... and I am so grateful that we got this chance to know true love. we both also became volunteers for Be The Match & we are going to do our best to get more people on that registry so more families can have the gift we have been given.

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  4. 4
    over 4 years ago
    JoLoaretti's Avatar

    loss of my independence, and my ability to act as if I have it all handled, I needed HELP

    Loss

    do not feel alone, reach out, and some one will catch you, this is a hard battle and You can do it alone but it will be an easier journey if you can share it. My husband had NO INSURANCE, we live in California, he ended up on medical,... odd thing is he gets better care on medical that I do on Kaiser, he gets better care on Medical at City of Hope one of the best facilities, and while he is there he often gets better care than people with great insurance plans, cause their plans have to get approved & the state is GOING to keep my honey alive, so tho there will always be some challenges, with or with out insurance there are benefits to both having it it & not having it...always a ying and a yang, always a good side & a bad side....if you feel like your on the bad side just remember all things in life are a cycle & if your in the dark the light is on its way.... My husband has AML has had 2 bone marrow transplants & the one 160 days ago did not work, I could find all sorts of things to be sad about, I can find a ton to worry about, but it does not change a thing, what I do is start everyday with what I am grateful for, and that makes the hard parts feel a bit easier. just remembering lifes cycles, and that they always do cycle... good bad.happy sad. light dark.high low. ebb flow. youth. age. life death. sickness health, day night. you are not alone, there are so many of of wondering why me.... I try and look at the lessons Im learning through this and it is amazing the things, actually the gifts I have been given by having cancer in my life, I learned to live in the moment, I have learned there is no time for bull Sh*#... I learned to be grateful for what I do have & that is right NOW, Ive learned to say what I need to when I need to, I learn to let those I love know it & one of the biggest is I have learned to let others HELP ME~!~ I have always loved to help others, but never let anyone help me... I knew how good it felt to help other people , but would never give anyone else that gift of feeling good by taking care of ME, how selfish I was & how great it does feel when some one who does care about me is allowed that privilege of feeling good for being able to care for a friend. that was a great lesson, and you know what you do not feel so alone when you finally admit you want and need help, it will be there~!~

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  5. 5
    about 4 years ago
    JoLoaretti's Avatar

    Lost loved one

    Loss

    My very best friend My husband & my best Teacher peacefully went to sleep one last time, No more battling leukemia, he dozed into his final slumber surrounded by his loving Family, he died with a smile on his Face at home in his bed~!~ grateful for every minute I got to be by his side, and for all the lessons learned along the way~!~ superlove YOU David Laoretti.

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