KLStone's Journey with AML with Multilineage Dysplasia (more...

Patient: Leukemia > Acute Myeloid Leukemia (AML) > AML with Multilineage Dysplasia (more than one Abnormal Myeloid Cell Type is involved)

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: over 13 years ago, Male, Age: 76

  1. 1
    • KLStone
    • Experience with AML with Multilineage ...
    over 4 years ago
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    Diagnosed

    Oh No

    Myelodysplastic Syndrome (MDS) diagnosed 2004 following routine physical exam, slightly low platelets and WBC. It was a SHOCK, MDS is so deadly; my wife Nancy and I couldn't believe how bad it was. I had never had health problems and had never been in a hospital overnight in my entire life. The first hematologist who did a BMB said we would just "watch it". I already knew from seaching the internet that I was in an advanced stage at RAEB-1 with 8% blasts, I didn't want to just watch it. I found a good hematologist who would treat the MDS aggressively. Dr. Ranga Brahmamdam at the Outpatient Cancer Center of TriHealth, Good Samaritan Hospital has been a wonderful doctor, I also have a wonderful nurse, Cynthia Rahe, who has administered treatments for over 8 years. We love both of them. Before starting my MDS Journey I would like to offer some suggestions: • Educate yourself on MDS • Find a doctor you are comfortable with who has experience treating MDS patients • Keep a positive attitude and never give up • Take advantage of Patient Conferences such as those offered by the AA/MDS Intl Foundation and the MDS Foundation.

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  2. 2
    • KLStone
    • Experience with AML with Multilineage ...
    over 4 years ago
    KLStone's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    oral chemotherapy: thalidomide & Revlimid injected chemo: Dacogen (decitabine) - low dose protocol

    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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  3. 3
    • KLStone
    • Experience with AML with Multilineage ...
    over 4 years ago
    KLStone's Avatar

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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