3XSurvivorGal's Journey:

Patient: Rare Cancers

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 6 years ago, Female, Age: 73

  1. 1
    about 5 years ago
    3XSurvivorGal's Avatar

    Diagnosed

    Oh No

    D&C biopsy showed a rare form of endometrial cancer - clear cell - which is very aggressive. Unfortunately because it is rare there is very little information based on experience out there, even for doctors.

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  2. 2
    about 5 years ago
    3XSurvivorGal's Avatar

    Which doctor? Which surgery? Which hospital?

    Decision Point

    A hysterectomy was absolutely necessary. First doctor would consider nothing but full abdominal incision to be thorough in obtaining samples for biopsy. 2nd opinion doctor confirmed diagnosis but was able to perform same surgery robotically. Which doctor? Which surgery? Which hospital?

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  3. 3
    about 5 years ago
    3XSurvivorGal's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    about 5 years ago
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    CAM (Complementary and Alternative Medicine)

    Other Care

    This person has yet to add any details about this experience.

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  5. 5
    about 5 years ago
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    Radiation. To do or not to do?

    Decision Point

    Agreed to the 3 internal vaginal cuff treatments. Wanted more time to consider external beam pelvic radiation since I was concerned about collateral damage to healthy organs. We also had a family vacation planned and the 25 day radiation treatment program could not be interrupted. One of the Rad Onc nurses shared her personal story with me, assured me that the "severe" side effects I was worried about were "old news". So...OK...let's do it all! (Keep in mind this was all "optional" to begin with. But now doctors were encouraging me to get the full treatment since I didn't tolerate the chemo.)

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  6. 6
    about 5 years ago
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    Internal radiation

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  7. 7
    about 5 years ago
    3XSurvivorGal's Avatar

    External radiation

    Radiation

    Treatments were painless. Did healing meditation and morning prayers during the brief time it took for 25 mornings. Connected with some lovely people in the waiting area. We became a temporary support group :) Side effects (see related) were tolerable and intermittent. I did not like abandoning my recently acquired healthy eating habits and diet.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  8. 8
    about 5 years ago
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    Side Effects

    This person has yet to add any details about this experience.

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  9. 9
    about 5 years ago
    3XSurvivorGal's Avatar

    Other Care

    This person has yet to add any details about this experience.

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  10. 10
    about 5 years ago
    3XSurvivorGal's Avatar

    IBS (frequent BMs, cramping and spasms, gas)

    Side Effects

    This person has yet to add any details about this experience.

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