leepenn's Journey with Triple-Negative Breast Cancer, Ductal

Survivor: Breast Cancer > Invasive (Infiltrating) Ductal Carcinoma > Triple-Negative Breast Cancer

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 3 years ago, Female, Age: 44, Stage II, HER2 Positive: No, ER Positive: No, PR Positive: No

  1. 1
    • leepenn
    • Experience with Triple-Negative Breast...
    over 2 years ago
    leepenn's Avatar

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  2. 2
    • leepenn
    • Experience with Triple-Negative Breast...
    over 2 years ago
    leepenn's Avatar

    Come back for biopsy.

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  3. 3
    • leepenn
    • Experience with Triple-Negative Breast...
    over 2 years ago
    leepenn's Avatar

    Biopsy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  4. 4
    • leepenn
    • Experience with Triple-Negative Breast...
    over 2 years ago
    leepenn's Avatar

    Diagnosed

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  5. 5
    • leepenn
    • Experience with Triple-Negative Breast...
    over 2 years ago
    leepenn's Avatar

    Decision Point

    Clinical trial

    0 Comments
  6. 6
    • leepenn
    • Experience with Triple-Negative Breast...
    over 2 years ago
    leepenn's Avatar

    biopsy for trial

    Oh No

    This person has yet to add any details about this experience.

    0 Comments
  7. 7
    • leepenn
    • Experience with Triple-Negative Breast...
    over 2 years ago
    leepenn's Avatar

    repeat biopsy for trial

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  8. 8
    • leepenn
    • Experience with Triple-Negative Breast...
    over 2 years ago
    leepenn's Avatar

    Clinical Trial

    ISPY2 - I got in.

    0 Comments
  9. 9
    • leepenn
    • Experience with Triple-Negative Breast...
    over 2 years ago
    leepenn's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    This sucks, but I know it's working.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  10. 10
    • leepenn
    • Experience with Triple-Negative Breast...
    over 2 years ago
    leepenn's Avatar

    low blood counts

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  11. 11
    • leepenn
    • Experience with Triple-Negative Breast...
    over 2 years ago
    leepenn's Avatar

    Cancer is shrinking

    Celebration

    Shrinkage-keep it coming!

    0 Comments
  12. 12
    • leepenn
    • Experience with Triple-Negative Breast...
    over 2 years ago
    leepenn's Avatar

    Cancer is shrinking

    Celebration

    SHRINKAGE! Yay! And last carboplatin/taxol combination ... Ten chemos down, six to go.

    1 Comment
  13. 13
    • leepenn
    • Experience with Triple-Negative Breast...
    over 2 years ago
    leepenn's Avatar

    Cellulitis

    Oh No

    DANG IT - I have cellulitis on/in my shin. I just started antibiotics. This might squirrel up my chemo schedule by pushing chemo this week back a day or two. That would squirrel up my work schedule!!!! I hate the loss in control of WHEN you get to ... you know .. .. do regular stuff like WORK and take care of your family and even just have a little fun. This happened because I got a big bruise on my leg... and my neuts dropped like a rock. Sigh.

    1 Comment
  14. 14
    • leepenn
    • Experience with Triple-Negative Breast...
    over 2 years ago
    leepenn's Avatar

    BACK ON TRACK!

    Drug or Chemo Therapy

    Blood counts back up - chemo this week - phew! I did not want to be ANOTHER week behind!

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    1 Comment
  15. 15
    • leepenn
    • Experience with Triple-Negative Breast...
    over 2 years ago
    leepenn's Avatar

    Anemia (low red blood cell counts)

    Side Effects

    PHEW - it's hard to not have much hemoglobin... If it goes much lower, I'll end up with a transfusion. AVOIDING THAT!!!! Yes yes - I know we work hard to keep our blood supply safe, but we can only keep it safe against things we actually know about....

    1 Comment
  16. 16
    • leepenn
    • Experience with Triple-Negative Breast...
    over 2 years ago
    leepenn's Avatar

    Cancer is shrinking

    Celebration

    MRI results are in! And the tumor doesn't look like a tumor anymore.... YIPPEE!!!! Chance that it's just scar tissue! As far as I know right now, I still have four more cycles of chemo to complete... But this is AWESOME news! I'm stoked! Full of positive optimistic thoughts for the first time in a while.....

    1 Comment
  17. 17
    • leepenn
    • Experience with Triple-Negative Breast...
    over 2 years ago
    leepenn's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Started my four cycles of AC yesterday.... Queezy... but otherwise, I seem to be doing alright. Rode my bike this morning - that helped a ton....

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  18. 18
    • leepenn
    • Experience with Triple-Negative Breast...
    over 2 years ago
    leepenn's Avatar

    Side Effects

    This person has yet to add any details about this experience.

    2 Comments
  19. 19
    • leepenn
    • Experience with Triple-Negative Breast...
    over 2 years ago
    leepenn's Avatar

    Finished treatment

    Celebration

    FInished my last chemotherapy today! Woot woot! I feel like crud, though.... Can't wait to get through this one last nadir... And I hope I never have to do this again! Next up - surgery.

    1 Comment
  20. 20
    • leepenn
    • Experience with Triple-Negative Breast...
    over 2 years ago
    leepenn's Avatar

    Nausea/Vomiting

    Side Effects

    Well, I dodged 15 out of 16 bullets, so one of my nurses says. This last cycle was AWFUL!!!! I was puking for several hours... not able to keep anything down... slept on the bathroom floor (thank goodness for the in-floor heating elements!). Seriously, it was like something out the movies. But, this was my last cycle... so, I have only one direction to head- that's up and up and up!!!!

    0 Comments
  21. 21
    • leepenn
    • Experience with Triple-Negative Breast...
    about 2 years ago
    leepenn's Avatar

    NED by PET and MRI!

    Celebration

    I finished chemotherapy about two weeks ago and had my post-chemo scans (one required by the research study). NEGATIVE by both scans! I am N.E.D. by scans!!!!! Next step is surgery, which will allow detection of microscopic disease, if it is there.... But, I'm hoping for more N.E.D. news!

    0 Comments
  22. 22
    • leepenn
    • Experience with Triple-Negative Breast...
    about 2 years ago
    leepenn's Avatar

    Double Mastectomy

    Procedure or Surgery

    I'm astonished with how well I'm doing! I LOVE being flat. Phantom nipple sensations are weird tho!

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  23. 23
    • leepenn
    • Experience with Triple-Negative Breast...
    about 2 years ago
    leepenn's Avatar

    Finished treatment

    Celebration

    cPR - complete pathological response!

    1 Comment