LindaLou47's Journey:

Survivor: Breast Cancer

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: over 5 years ago, Female, Age: 70

  1. 1
    over 4 years ago
    LindaLou47's Avatar

    Diagnosed

    Oh No

    After faithfully getting mamograms every year I was diagnosed with IV MBC (metastized breast cancer with many lymph nodes and bone lesions affectd.) in October 2011. How could this be? Had I not had my annual mamagrom in January 2011?

    2 Comments
  2. 2
    over 4 years ago
    LindaLou47's Avatar

    oral Letrozole and Dasatinib

    Clinical Trial

    Started this study on November 30th 2011. Side effects include HOT flashes, slight naropathy, hair thining, and skin rash along with fatigue.

    0 Comments
  3. 3
    over 4 years ago
    LindaLou47's Avatar

    Bone strengthening drugs

    Drug or Chemo Therapy

    January 2012 starting receiving zometa for spine, sacrum and pelvis bone mets. Not side effects for occasional joint pain, but at my age those are to be expected.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  4. 4
    over 4 years ago
    LindaLou47's Avatar

    Double Mastectomy

    Procedure or Surgery

    My mental state improved when all the masses in my breast were removed.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  5. 5
    over 4 years ago
    LindaLou47's Avatar

    Breast Reconstruction (Implant)

    Procedure or Surgery

    My recon surgeon is fantastic. Expanders were placed after double masectomy in May. Implant surgery to be schedule as 9-5-12.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  6. 6
    over 4 years ago
    LindaLou47's Avatar

    Breakthrough

    Celebration

    July CT scan shows only 2 lymph nodes affected!!!! These nodes were not remove during masectomies for the clincial study to use to follow drug response....shrinkage or ?

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  7. 7
    over 4 years ago
    LindaLou47's Avatar

    Anniversary

    Celebration

    Plans to celebrate one year surviorship with my team "Linda's Bosom Buddies" in the Komen's race for a cure in Denver in October!!

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  8. 8
    over 4 years ago
    LindaLou47's Avatar

    Dropping clinical trial

    Decision Point

    the protocol for this trial is CT scans every 2 mos (6 times a year) and bone scans every 4 mos (3 times a year). The cost of scans are my (insurance now medicare) responsiblity leaving me expensive co pays and higher expenses for my zometa treatment. I have applied for a grant to help defray the costs, still waiting to hear if they can help.

    0 Comments
  9. 9
    over 4 years ago
    LindaLou47's Avatar

    Other

    Clinical Trial

    This person has yet to add any details about this experience.

    0 Comments
  10. 10
    about 1 year ago
    LindaLou47's Avatar

    Nerve damage (peripheral neuropathy)

    Side Effects

    Will be starting my 6 cycle of taxol and the neuropathy in my feet has escalated. I have noticed it is the worst at bedtime, causing sleep loss.

    0 Comments
  11. 11
    over 4 years ago
    LindaLou47's Avatar

    Clinical Trial

    This person has yet to add any details about this experience.

    0 Comments