CarKling's Journey:

Survivor: Breast Cancer > Inflammatory Breast Cancer

Patient Info: Finished active treatment more than 5 years ago, Diagnosed: almost 19 years ago, Female, Age: 56, Stage III, HER2 Positive: Yes, ER Positive: Yes, PR Positive: Yes

  1. 1
    • CarKling
    • Experience with Inflammatory Breast C...
    about 10 years ago
    CarKling's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    4 different chemo drugs: Adriamycin, taxol, taxotere, carboplatin

    Easy to Do: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  2. 2
    • CarKling
    • Experience with Inflammatory Breast C...
    about 10 years ago
    CarKling's Avatar

    Medicine for low white blood cell count

    Drug or Chemo Therapy

    Was able to keep working only because of this drug since I am around sick people a lot.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  3. 3
    • CarKling
    • Experience with Inflammatory Breast C...
    about 10 years ago
    CarKling's Avatar

    External radiation

    Radiation

    The last week was a little rough and the couple of weeks that followed, no major skin issues, just felt weak and tired.

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  4. 4
    • CarKling
    • Experience with Inflammatory Breast C...
    about 10 years ago
    CarKling's Avatar

    Chemo brain

    Side Effects

    very slowly got better, but not all the way :-(

    0 Comments
  5. 5
    • CarKling
    • Experience with Inflammatory Breast C...
    about 10 years ago
    CarKling's Avatar

    Hair loss (alopecia)

    Side Effects

    It grew back :-)

    0 Comments
  6. 6
    • CarKling
    • Experience with Inflammatory Breast C...
    about 10 years ago
    CarKling's Avatar

    Hot flashes

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  7. 7
    • CarKling
    • Experience with Inflammatory Breast C...
    about 10 years ago
    CarKling's Avatar

    Low white blood cell counts (neutropenia)

    Side Effects

    Was able to control with injections

    0 Comments
  8. 8
    • CarKling
    • Experience with Inflammatory Breast C...
    about 10 years ago
    CarKling's Avatar

    Anemia (low red blood cell counts)

    Side Effects

    Able to control with injections

    0 Comments
  9. 9
    • CarKling
    • Experience with Inflammatory Breast C...
    about 10 years ago
    CarKling's Avatar

    Axillary Lymph Node Dissection

    Procedure or Surgery

    Sentinal and axillary 15 lymph nodes removed. I have never had an issue with lymphedema.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  10. 10
    • CarKling
    • Experience with Inflammatory Breast C...
    about 10 years ago
    CarKling's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    Loved the port....minimal care, no digging around trying to find veins!

    Went as Expected: Strongly Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  11. 11
    • CarKling
    • Experience with Inflammatory Breast C...
    about 10 years ago
    CarKling's Avatar

    Mastectomy

    Procedure or Surgery

    I had a right mastectomy with TRAM reconstruction. It was awesome to have everything done at once instead of having multiple reconstruction surgeries. 8 years later, I was diagnosed with DCIS in my left breast and I am currently undergoing reconstruction in that breast after having it removed, and I have to say it's a pain in the butt! (but I'm glad to have the opportunity for reconstruction)

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments