BruceInErwin's Journey with Anal Cancer

Patient: Anal Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 4 years ago, Male, Age: 45, Stage 0

  1. 1
    about 4 years ago
    BruceInErwin's Avatar

    Cancer is back/Recurred

    Oh No

    I have had 2 surgeries to remove pre-cancerous condylomas. My anal pap smear showed LSIL and ASIL and could not rule out HSIL. I was diagnosed with 13 high risk types of HPV. Even though the diagnosis isn't cancer yet. It seems as everything that I have been going through is pointing that way. What are the odds that it will eventually progress to full cancer? I feel like I have told that I have "Cancer Light". Not quite cancer but almost there. I jokingly say that I am at stage 0.5 since one side of my anal canal has AIN Grade 2 and the other side has AIN Grade 3.

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  2. 2
    about 4 years ago
    BruceInErwin's Avatar

    Surgery through the anus to remove tumor

    Procedure or Surgery

    I have had 2 surgeries for this. It is very painful, causing me to spend hours in the bathroom. Urinating and having bowel movements are extremely painful. Just how many more surgeries can a person have before there is permanent damage? I am not so sure I want to subject myself to painful surgeries every 4-6 months for years on end. At some point I just want to monitor the cancer and as soon as it completely hits Stage 1, then start treatments to cure it. Just to be clear. I selected this option because of the surgery. I have not gone through radiation and chemotherapy yet. I can't wait until I do have to go through treatments. Surgery is extremely painful and makes urination and bowel movements more difficult each time.

    Went as Expected: Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    about 4 years ago
    BruceInErwin's Avatar

    My mind/Sense of Humor

    Loss

    I expected to eventually be told that I have cancer. But when I was told, I didn't expect it to sting as bad as it did. I really thought I had prepared myself emotionally for this. I couldn't have been more wrong.

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  4. 4
    about 4 years ago
    BruceInErwin's Avatar

    Acceptance...

    Decision Point

    After 4 days of a personal pitty party. I have come to acceptance of my diagnosis and forthcoming trials. I am blessed that I have my Heavenly Father on my side and the love and support of GREAT Friends and Family.

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  5. 5
    about 4 years ago
    BruceInErwin's Avatar

    When to stop surgeries in favour of treatments.

    Decision Point

    At the rate I am going now, I will have to have surgeries to remove the lesions every 4 to 6 months. At some point I will just have to say NO MORE! I have talked to too many people that have regretted allowing themselves to have so many surgeries only to progress to full blown cancer. My body can't afford to keep fighting 2 virus's. HIV is already taxing enough as it is. It has been agreed by both my Infectious Disease and Colorectal Doctors that I will progress to full blown cancer.

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