mcgillde's Journey with Slow Growing, Chronic Lymphocytic Leu...

Survivor: Leukemia > Chronic Lymphocytic Leukemia (CLL) > Slow Growing

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: almost 7 years ago, Female, Age: 63

  1. 1
    • mcgillde
    • Experience with Slow Growing, Chronic...
    about 5 years ago
    mcgillde's Avatar

    Diagnosed

    Oh No

    I have had 5 primary types of cancer, 2 of which recurred, so I had a lot of Oh No" moments! I was19 when diagnosed with Hodgkins Disease. I was told the treatment of choice (1973) was: surgery to remove the tumor, followed by weeks of radiation, followed by abdominal exploratory (removal of spleen and sample lymph nodes, none of which showed any malignancy which was both relieving and yet annoying, as now I don't have a spleen and it was a very painful operation to recover from. My Hodgkins was early stage and I was reassured that the treatment was effective and had only been available for about 2 years. I was never afraid I would die from this. The initial chest surgery involved open chest procedure of sawing through my sternum and using a rib spreader in order to get to the tumor. This, of course, left a noticeable scar which started 2 inches below my throat to the base of the sternum. Did I mention I was 19? I was in a teaching hospital and was visited by classrooms of interns/residents/doctors who wanted to check my incision. If I had thought to put my gown on backwards, I could have maintained a little dignity perhaps, but, I didn't so any time anyone came by to check on me, my entire chest was exposed to a mixed male/female group. PLUS, I personally KNEW one of the young male interns (!) Arg.

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  2. 2
    • mcgillde
    • Experience with Slow Growing, Chronic...
    about 5 years ago
    mcgillde's Avatar

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  3. 3
    • mcgillde
    • Experience with Slow Growing, Chronic...
    about 5 years ago
    mcgillde's Avatar

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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