Jenann78's Journey with Nodular sclerosing

Survivor: Hodgkin Disease > Classic Hodgkin Disease > Nodular sclerosing

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: about 6 years ago, Female, Age: 38, Stage II

  1. 1
    • Jenann78
    • Experience with Nodular sclerosing
    about 5 years ago
    Jenann78's Avatar

    Diagnosed

    Oh No

    Found a lump in my neck. Thought it was infection or swollen glands. Wasn't going away. Had CT scan and blood work. Was told I need a chest CT and more blood work. One appt said blood work wasn't back, but scans looked clear. I just needed to call in for blood work results. 4 days later, called for results and was told I had to come in because they don't release info over the phone. Thinking all was fine, I headed to the appt by myself thinking there was nothing. Got there to see a different dr who told me that not all was clear. It looked like lymphoma, but not sure which kind. I was in utter shock! I obviously didn't go back to work. I went straight home crying into my husbands arms. Then began my cancer journey.

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  2. 2
    • Jenann78
    • Experience with Nodular sclerosing
    about 5 years ago
    Jenann78's Avatar

    Surgery

    Procedure or Surgery

    I had biopsy of lymphnodes in my neck. It wound up being a cluster removed because they were stuck together. The problem with recovery was my allergic reaction to the sterastrips. I broke out on a huge nasty blistered rash on my neck which was extremely uncomfortable and hurt. It took a while to recover.

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • Jenann78
    • Experience with Nodular sclerosing
    about 5 years ago
    Jenann78's Avatar

    MRI

    Procedure or Surgery

    An MRI is not fun if you are claustrophobic like I am!! However, my coping mechanism is singing "99 bottles of beer on the wall" in my head!

    Went as Expected: Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  4. 4
    • Jenann78
    • Experience with Nodular sclerosing
    about 5 years ago
    Jenann78's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I was set up for 4 treatments of ABVD. It's nasty stuff that required 4 different anti-nausea meds before starting the chemo treatment. Plus I was sent home with heavy duty anti-nausea meds to take after treatment. My biggest issue was I have horrible veins and the first shot at the IV took 4 tries. Once we got going, chemo took 8 hours for me!!! I had a problem with the (B) Bliomycin. It dropped my BP and we had to let the meds drip very slow. After my first chemo, we decided I needed a port. It made things easier, but chemo still lasted 6-8 hours for me.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  5. 5
    • Jenann78
    • Experience with Nodular sclerosing
    about 5 years ago
    Jenann78's Avatar

    External radiation

    Radiation

    I had 17 days of radiation. It zapped my energy and had throat soreness, dry mouth, and burn on my chest.

    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  6. 6
    • Jenann78
    • Experience with Nodular sclerosing
    about 5 years ago
    Jenann78's Avatar

    Finished treatment

    Celebration

    September 22nd was my last day of Chemo! November 8th was my last day of Radiation & November 10th I had my port removed! All done!

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  7. 7
    • Jenann78
    • Experience with Nodular sclerosing
    about 5 years ago
    Jenann78's Avatar

    Surgery

    Procedure or Surgery

    I had my port removed on November 10th! It was 2 days after my last radiation treatment! Now it was time to heal and recover!

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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