Peroll's Journey with Colorectal (Colon) Cancer

Patient: Colorectal (Colon) Cancer

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: over 12 years ago, Male, Age: 57, Stage IV

  1. 1
    • Peroll
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Peroll's Avatar

    Diagnosed

    Oh No

    When first diagnosed it was the big Oh No. I thought I would be dead in 6 months. The Gastroenterologist that found the cancer and gave us the news was not very positive. I guess thwat since his job is mostly to fiund the cancer and he does not get to cure it that might explain the attitude

    0 Comments
  2. 2
    • Peroll
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Peroll's Avatar

    Colon surgery (colectomy or hemicolectomy)

    Procedure or Surgery

    My surgeon was great. His first words to us (My wife, my father and I) was "I'm goiong to save you" and he has, more than once. He took the time to expain the procedure in depth and answer all of our questions. When looking for a surgeon you want one with confidence amnd an attitude that he can do anythihng. While surgery was not fun and quite scary he made it better by doing everything right. Recovery was as fast or faster than promised

    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. 3
    • Peroll
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Peroll's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I next was introduced to my Oncologist, Dr Ingber who has been with me since then and is the director of my treatment. He presented the options and noted that with chemo I had a 5% cance of reoccurance and with out it it was 50% so I opted for prevenative Chemo. THis lasted about 6 mohnths and overall was niot too bad. It took Friday afternoons and I generally felt crappy until sometime Monday but once I learned to deal with the diaherra and nausea it was not too bad.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  4. 4
    • Peroll
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Peroll's Avatar

    Cancer has spread/Metastasized

    Oh No

    About a year after completing chemo, a rou8tine scan showed a little spot in each lung. A biopsey of one confirmed it was my cancer back. At that point the standard practice for cancer in multiple places was chemothrerapy so I got more

    0 Comments
  5. 5
    • Peroll
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Peroll's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    This round of chemothrerapy was with different (newer) drugs. It was definatlely a much harder regimine. I got chemo on Wdenesdays with a portable pump attached for another 48 hours. The first day whent OK but by noon on thursday I was getting pretty sick. Most weeks I ended up back at the hospital getting rehydrated because I was not able to keep anything down between vomiting and diaherra. After a couple of month of this my Onco;logist swithwed up the chremo drugs so that I got chemo on Fridays with no pump and I did much better only ocasionally having to get rehydrated.

    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  6. 6
    • Peroll
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Peroll's Avatar

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
  7. 7
    • Peroll
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Peroll's Avatar

    After a year of chemo and things staying the same tumor size wise I wanted to know what else could be done to get rid of the cancer

    Decision Point

    I wanted to know if there was life beyond weekly chemo and the side effects. i wanted a more normal life. So I started talking to my Oncologist about different approaches that targeted and killed or removed the tumors. This led to consulatations with my surgeon and he developed a plan to remove the tumors. The tumor in my left lung was on the edge so easy to get at and could be removed with a laproscopic wedge resection using a wire location technique. The tumor in my right lung was in the middle of gthe upper lobe and the surgeon was concerned that there could be a problem resulting in damage to an artery in the lung so the plan was to remove the entire upper lobe of my right lung. The plan was to do the left (easy) lung first then a few weeks later do the right lung. The wire locatrion technique involved sending a needle into my side using a CT machine to get it to thje tumor and then a wire attached to the needle is left in so that the surgeon can follow the wire to the sitre of the tumor. Because the lung can not ge numbed this turns out to ba a very painful process. Oter than the wirelocatrion pain this surgery went fine and the surgeon was so impressed with the size of my chest that he decided he could do the right side using the same wire location and wedge recision technique. Durinfg the wirelocation part of this procedure they at least gave me some medication to reduce the anxiety and minimize the pain. This time i over an hour to get the wire into the right position before surgery could begin.

    0 Comments
  8. 8
    • Peroll
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Peroll's Avatar

    Surgery

    Procedure or Surgery

    As noted the surgeries went as planned and turned out better than expected since I did not have to have a whole lobe of a lung removed. The only issues was that there was only about 1 mm of clean tissue on the edge of the tumor removed fromt eh right lung so there was concern that some of the tumor might have remained. To deal with this radiation was recommehnded.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
  9. 9
    • Peroll
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Peroll's Avatar

    External radiation

    Radiation

    Radiation cvonsisted of once a day for just a few minutes, weekdays for a month. Go in lie on th table and get zapped for a few seconds. There was rally no sifde effects and no discomfort at all. Radiation was easy compared to the rest of the treatments.

    Painless Experience: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  10. 10
    • Peroll
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Peroll's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    The next step was more prevennative chemotherapy using the same drugs as last time around. It was the same side effects and the same discomfort but this time it only lasted about 12 weeks and with an end in sight it was much easier to endure.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  11. 11
    • Peroll
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Peroll's Avatar

    Finished treatment

    Celebration

    I am not really sure I woula have titled this a celebration but I was done with treatment for now and things were looking good. I was threoetically cancer free at that point and would be so for about the next three years. This was a very good part of the journey.

    0 Comments
  12. 12
    • Peroll
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Peroll's Avatar

    Treachea Cleaning Surgery

    Procedure or Surgery

    The surgery was an out patirent procedure where the Dr wnet down my throat and into the treachea and cut out the part of the tumor that was blocking the treachea. Everything went well and recovery was just a coulpe of days at home.

    Went as Expected: Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  13. 13
    • Peroll
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Peroll's Avatar

    Cancer is back/Recurred

    Oh No

    I developed a cough that would not go away. After seeing the doctor several times and getting antibiodics several times the Doctor finally sent me to a pulmologist who decided to look down my trachea and see what was going on. he discovered that the trachea branch to my left luhng was 90% blocked with a cancerous tumor that was biopsied and identified as my colon cancer,. The cancer had spread to a lymph node at the crotch of my treachea and from there grown through the wall of my trachea resuklting in the blockage. While this pulomnologist was not capable of takingcare of thie problemn, he did kbnow od one at a nearby hospital who was one of a handfull of doctors with experience doing this type of proceedure.

    0 Comments
  14. 14
    • Peroll
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Peroll's Avatar

    External radiation

    Radiation

    I then had to deal with the tumor that remained outside of the treachea in the lynmph node. This was handled by radiation vwery similar to what i had before. 39 weekdays at about 15 minutes a day and it was over. The only side effect was a radiation burn on my skin that itched a bit but reallyt was not much.

    Painless Experience: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
  15. 15
    • Peroll
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Peroll's Avatar

    Cancer is back/Recurred

    Oh No

    After the rafdiation I had another scan that showed the tumor in the lymph node was likely dead and no longer a factor; however, it did show a new tumor in my right adrenal gland. The immediate reaction is that I needed to restart chemotherapy.

    0 Comments
  16. 16
    • Peroll
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Peroll's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I restarted chemotherapy getting the same drugs as before which made the side effects at least known; however, I do have to say that they do seem to get harder to live with as time gors on. At this point I am dealing with extreeme fatigue in addition to the other side effects.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  17. 17
    • Peroll
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Peroll's Avatar

    Cancer has spread/Metastasized

    Oh No

    Iam not really sure this ius really an Oh No item but it sort of fits. After 12 weeks iof chremo I had a routine scan tio see how things are doing. The scan showed no signs that the cancer has spread at all but the tumor in my adreanal gland has grown moderately. This caused my Onclocgist to immediately think about treatments to remove or other wise kill the tumor.

    0 Comments
  18. 18
    • Peroll
    • Experience with Colorectal (Colon) Cancer
    over 4 years ago
    Peroll's Avatar

    What treatmnent do I use to remove or kill Adrenal Tumor

    Decision Point

    So at this point I am looking into the different treatment to deal with the tumor. The good thing is that there are a number of options from surgery to several types of radiation treatments. At this poiint I am leraning toward surgery because it is more difinitive in getting the tumor out; however, I have yet to meet with the surgeon so I am not sure wiaht the final decision will be. Stay tuned!!

    1 Comment