joyce508's Journey with Non-Hodgkin Lymphoma (NHL)

Patient: Non-Hodgkin Lymphoma (NHL)

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 6 years ago, Female, Age: 56

  1. 1
    • joyce508
    • Experience with Non-Hodgkin Lymphoma ...
    over 5 years ago
    joyce508's Avatar

    Depression/Anxiety

    Side Effects

    I did my last chemo over 2 months ago,but some side effects are getting worse. I've been having a lot of pain in feet/ankle area.they swell burn,and I feel like something is crawling on my ankle?I also get out of breath when going upstairs,at times I'm breathing so fast I have to sit or lean on wall till I catch my breath.Because I've had so many problems since I found out I had cancer ,and now the pain.I just don't care any more I lay in bed for days I don't even want to shower.I am no longer the person I once was.I feel like a burden to my adult children,I can't walk, stand,or move like I use to.I gained like 75 pounds from months of steroids,I'm bald,I haven't been able to work,bills pile up.I'm finding it harder each day to see the light at the end of the tunnel.Is there hope?Should I even try? I feel alone,confused ,and don't know where to turn

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  2. 2
    • joyce508
    • Experience with Non-Hodgkin Lymphoma ...
    almost 5 years ago
    joyce508's Avatar

    Radiation

    the radiation itself is painless it was the fear of the unknown that caused me to be so afraid that I thought the radiation was burning me.I had a very hard time wearing the mask thing i felt like they were bolting my head down plus with the straps that held me in place i was a mess.I also would breath so hard once mask was on that i had trouble breathing. I had to pre-med myself daily before i left my house so they could give me my treatment.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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  3. 3
    • joyce508
    • Experience with Non-Hodgkin Lymphoma ...
    almost 5 years ago
    joyce508's Avatar

    Finished treatment

    Celebration

    My treatment ended the day before Christmas.I'm still having a hard time getting my life back.I no longer know the person i look at in the mirror.I was on steroids for months at a time causing me to gain over 50lbs.My red hair fell out and by once bald head now has this dark curly stuff growing every which way .I no longer have a neck/chin because my neck is so fat,I guess from the kind of cancer I had.My mind is still foggy at times even tho all the brain testing and stuff comes back fine.I still wake up with nightmares because where they cut across neck would break open when my body swelled up from the meds and i would wake up covered in blood that was running down my neck and had to be rushed to the E.R. I lost my job,I still have back and leg pain making it impossible for me to stand in one spot.I have a twitch /tremble in my lips that causes people to look at me when I go out.plus my mouth still is always dry and i always get a film or ??in corners of mouth.I last my voice for a few months and living alone made it hard to ask anyone for help or call doctors for me .I find myself laying in bed not caring about anything anymore.Piles of trash lay around and many days i just don't have the energy to even shower.All these things just makes me feel worse.I had been getting welfare,medical,and foodstamps but they will be stopping them cause i need a dr. to fill forms every month.and I'm to tired to fight with the system anymore I lost everything i worked years to get.Anything that could be sold for a few dollars i had to sell to pay bills and pay for my meds.and stuff.Cancer changes everything

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  4. 4
    • joyce508
    • Experience with Non-Hodgkin Lymphoma ...
    almost 5 years ago
    joyce508's Avatar

    everything has changed

    Oh No

    I wrote the wrong thing in celebration and don't know how to post here so please read celebration to hear my on no

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