bavin's Journey with Papillary Carcinoma, Thyroid Cancer

Survivor: Thyroid Cancer > Papillary Carcinoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 10 years ago, Female, Age: 24, Stage I

  1. 1
    • bavin
    • Experience with Papillary Carcinoma, Thy...
    over 4 years ago
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    Misdiagnosed

    Oh No

    I completely lost my voice for an unknown reason at the time. My primary physician suggested many different reasons:laryngitis, asthma, a cold, and allergies. But after numerous tests nothing was explained.

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  2. 2
    • bavin
    • Experience with Papillary Carcinoma, Thy...
    over 4 years ago
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    Diagnosed

    Oh No

    I was happy to be finally diagnosed with thyroid cancer and have a reason for my voice loss. But for a girl going into high school, hearing the words you have cancer can be tough. Having cancer wasn't in my plans

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  3. 3
    • bavin
    • Experience with Papillary Carcinoma, Thy...
    over 4 years ago
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    Surgery

    Procedure or Surgery

    I underwent a total thyroidectomy removing the entire thyroid along with a partial lymph node dissection of 19 lymph nodes that were found to be cancerous. I was in a little pain but not too terribly. The surgeon did a wonderful job with my scar as well. I had a tube in my neck for about two weeks after.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
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  4. 4
    • bavin
    • Experience with Papillary Carcinoma, Thy...
    over 4 years ago
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    Problem from Surgery

    Oh No

    They were not able to salvage the nerve going to my vocal cord that was laden with the tumor. As a result I learned my vocal cord was permanently paralyzed and that I might not be able to speak regularly again.

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  5. 5
    • bavin
    • Experience with Papillary Carcinoma, Thy...
    over 4 years ago
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    Finished treatment

    Celebration

    I then finished my treatment with scans that showed the cancer was gone!

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  6. 6
    • bavin
    • Experience with Papillary Carcinoma, Thy...
    over 4 years ago
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    Surgery

    Procedure or Surgery

    I then underwent thyroplasty to implant an object to help my paralyzed vocal cord so that I could speak normally again. It was an overnight surgery that besides opening up my neck again was not bad at all.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  7. 7
    • bavin
    • Experience with Papillary Carcinoma, Thy...
    over 4 years ago
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    Breakthrough

    Celebration

    I now had my voice back and cancer free!

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  8. 8
    • bavin
    • Experience with Papillary Carcinoma, Thy...
    over 4 years ago
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    Chronic Pain

    Oh No

    Starting two years after everything had finished I started having bad chronic pain in my neck associated with scarring from radiation and nerves around where I had surgery.

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  9. 9
    • bavin
    • Experience with Papillary Carcinoma, Thy...
    over 4 years ago
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    Medicine/Care

    Decision Point

    With different types of muscle relaxers, nerve shots, narcotics, and depressants all to tryt o help the pain, I had to decide how I was going to manage the pain. With a lot of the medicine I could not function at school. I decided to go off all the medicine, I use a TNS unit now to control the pain, and control my stress level to help the pain.

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  10. 10
    • bavin
    • Experience with Papillary Carcinoma, Thy...
    over 4 years ago
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    Anniversary

    Celebration

    I celebrated five years from being diagnosed a few months ago, and excited that I could come through. I now live a healthy normal life, in college and very involved in thyroid cancer awareness! I still struggle with chronic pain but it is a small price to pay for everything. I'm blessed!

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  11. 11
    • bavin
    • Experience with Papillary Carcinoma, Thy...
    over 4 years ago
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    Internal radiation

    Radiation

    I then had radioactive iodine to remove the rest of the cancer. Besides having to be isolated from everyone and not touch anything, it was painless and not a problem.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Neutral/NA
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