Zacksdad's Journey:

Survivor: Brain and Spinal Cord Tumors in Adults > Glioma > Astrocytoma > High-Grade Astrocytoma (also called Glioblastoma)

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 6 years ago, Male, Age: 53

  1. 1
    • Zacksdad
    • Experience with High-Grade Astrocytom...
    over 4 years ago
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    Removed tumor on top of right frontal lobe

    Procedure or Surgery

    Had a headache prior to surgery was worse in recovery until the dressing was removed

    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  2. 2
    • Zacksdad
    • Experience with High-Grade Astrocytom...
    over 4 years ago
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    Hair loss (alopecia)

    Side Effects

    I experienced hair loss from radiation and an increased appetite from steriods to control the sweeling of my brain eating breakfast 3 to 4 times every night my weight went from 165 to 205 in 3 months. Once I weened off of the steroids My weight returned to it's regular 170. I have a good appetite now thanks to my family's GP who suggested yogurt with probiotics and Prilosec OTC twice a day. My weight is currently 170. For my hair loss I just shave my head It is really no big deal for me.

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  3. 3
    • Zacksdad
    • Experience with High-Grade Astrocytom...
    over 4 years ago
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    External radiation

    Radiation

    I am not sure if my hair fell out from radiation or chemo as at the time it happened I was on both at the same time. Radiation every week day and check-up with radio-onocolgist make it a little hard to work.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Strongly Agree
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  4. 4
    • Zacksdad
    • Experience with High-Grade Astrocytom...
    over 4 years ago
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    Seizures

    Side Effects

    I have had several seizures. Stopped one today with atevan which made me very tired or drunk like feeling. overall I'm glad I had it.

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  5. 5
    • Zacksdad
    • Experience with High-Grade Astrocytom...
    over 3 years ago
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    Cancer is back/Recurred

    Oh No

    Same place Back on chemo and steroids

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