Joyceeprakke's Journey with High-Grade, Osteosarcoma

Survivor: Bone Cancer > Osteosarcoma (Also called Osteogenic Sarcoma) > High-Grade

Patient Info: Finished active treatment more than 5 years ago, Diagnosed: about 38 years ago, Female, Age: 55

  1. 1
    over 4 years ago
    Joyceeprakke's Avatar

    Diagnosed

    Oh No

    I was a senior in high school and a gym teacher assistant. I was showing kids how to do a hip swing on the uneven bars and when I hit the lower bar with my hips I hurt myself and could not walk for a couple of days. That is when I went to the doctor and had my first xray. Doctors appointments did not stop for months after that.

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  2. 2
    over 4 years ago
    Joyceeprakke's Avatar

    Surgery

    Procedure or Surgery

    They found a tumor in my right pelvis the size of a small football, in July 1979 I was the fourth person in the US to have a radical amputation called a hemipelvectomy. I lost all bones under my right ribs. I did not really hurt, and I did not experience phantom pains. Oddly, my balance came to me like I was meant to have one leg! I was in the hospital for 40 days because of complications with healing, but other than that they did a great job.

    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    over 4 years ago
    Joyceeprakke's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I was on chemotherapy three days a week, three weeks a month. It was a new protocol back then, but it worked. I had tiredness, mouthsores, and weightloss, and hair loss. I did find that if I sipped beer during the chemo treatment I did not get nausea. The doctors were ok with that and it worked for months. I slept alot! I was on chemo for thirteen months, it was rough but 35 years later with no reoccurrance would not change a thing.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    over 4 years ago
    Joyceeprakke's Avatar

    External radiation

    Radiation

    I had a second original site of osteosarcoma a few months after I lost my leg. It was in my right shoulder and only in the muscle. They excised the egg sized tumor and I had 60 radiation treatments, one a day, five days a week on the site. The radiation at this site did not affect anything in my body, except my skin. My skin has healed, but remains a spot that I am very careful of because it can never have skin graphs or any kind of surgery on that site, it will not heal because of the degradation.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  5. 5
    over 4 years ago
    Joyceeprakke's Avatar

    Finished treatment

    Celebration

    I have celebrated the rest of my life. I have been bone cancer free for 35 years. You must live life to its fullest, within the realms of living many years. Just dont sweat the small stuff, if it is not life threatening, you can deal with it in an easy manner. Life is good, even with the struggles.

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