63stratman's Journey with Acinic Cell Carcinoma

Survivor: Head & Neck/Throat Cancer > Salivary Gland Cancer > Adenocarcinoma > Acinic Cell Carcinoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: about 10 years ago, Male, Age: 67, Stage II

  1. 1
    • 63stratman
    • Experience with Acinic Cell Carcinoma
    about 5 years ago
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    Diagnosed

    Oh No

    Found lump in front of left ear. CT scan couldn't tell if it was benign or malignant. Fine needle aspiratin (FNA) was inconclusive, but showed no malignancy. Found out later, FNAs for this kind of cancer are relatively worthless. Luckily I had one of the foremost parotid cancer specialists in the world and he scheduled me for surgical removal.

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  2. 2
    • 63stratman
    • Experience with Acinic Cell Carcinoma
    about 5 years ago
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    Surgery

    Procedure or Surgery

    Long (7 hour) surgery. Surgeon found a well-encapsulated 2cm tumor deep in parotid. He had it removed successfully and was preparing to close it up (thinking it was benign) when the pathology report came back with the diagnose of Acinic Cell Carcinoma, Papillary Cystic Variant. He then removed a number of lymph nodes and then closed me up. All lymph nodes were negative.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • 63stratman
    • Experience with Acinic Cell Carcinoma
    about 5 years ago
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    External radiation

    Radiation

    Had 28 days of IMRT with almost no side effects.

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  4. 4
    • 63stratman
    • Experience with Acinic Cell Carcinoma
    about 5 years ago
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    Radiation

    Decision Point

    Surgery left clear, but very narrow margins. This prompted the surgeon and radiologist to recommend radiation. If I had been a young person, I would have probably refused, due to the odds of a secondary cancer.

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  5. 5
    • 63stratman
    • Experience with Acinic Cell Carcinoma
    about 5 years ago
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    Follow up CTs and PETs

    Decision Point

    I have followed my surgeon's recommendation for yearly full-body CTs and PET scans. However, there are mixed opinions about this in the medical community. Being such a slow-growing cancer, many specialists do not recommend PET scans. Also, the amount of radiation recieved by yearly CTs and PET scans is worrisome. But, partly due to the extensive experience of my surgeon, I followed his recommendation and had them.

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  6. 6
    • 63stratman
    • Experience with Acinic Cell Carcinoma
    about 5 years ago
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    Anniversary

    Celebration

    Approaching the 5-year mark and the cancer has not returned.

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