cathy1967's Journey with Sarcoma - Adult Soft Tissue Cancer

Patient: Sarcoma - Adult Soft Tissue Cancer

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 5 years ago, Female, Age: 50, Stage II

  1. 1
    • cathy1967
    • Experience with Sarcoma - Adult Soft...
    over 4 years ago
    cathy1967's Avatar

    Diagnosed

    Oh No

    The oncologist that I was seeing had no idea what we were dealing with. It took over 3 weeks for the patholigist to give a diagnosis which was wrong.I ha to find someone to help me.I have ended up out of state -5 hours from my family but at least they know what they ae doing .

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  2. 2
    • cathy1967
    • Experience with Sarcoma - Adult Soft...
    over 4 years ago
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    External radiation

    Radiation

    I am done with 25 treatments in all. The actual treatment was pain less as the treatments have gone on - it hurts after.Picture a very bad sunburn , now put a shirt over it .now repeat .I have tried all the possible creams and ibuprofen - the worst is that I can not seem to find a comfortable position to sit or lay in I am totally healed from radaition - heading to surgey in 2 days

    Painless Experience: Strongly Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • cathy1967
    • Experience with Sarcoma - Adult Soft...
    over 4 years ago
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    Surgery

    Procedure or Surgery

    my surgery was on October 23rd 2012 - I stayed in the hospital for 6 days - with a wound vac and a skin graft. -I have been home 3 days now - I can not find a comfortable position to be in - seeing how the wound is on the back of my thigh - sitting , laying and even walking is not fun - I am taking one day at a time - it has got to get better

    Went as Expected: Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
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  4. 4
    • cathy1967
    • Experience with Sarcoma - Adult Soft...
    over 4 years ago
    cathy1967's Avatar

    Surgery

    Procedure or Surgery

    December 2012 within 10 days I lost the use of both of my hands- a tumor grew on my spine- emergency surgery was done to remove the tumor- I was released home on Christmas eve - 3months off work,being unable to drive,open doors,write my name or take care of my family. That is when the depression set in.

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  5. 5
    • cathy1967
    • Experience with Sarcoma - Adult Soft...
    almost 3 years ago
    cathy1967's Avatar

    External radiation

    Radiation

    10 treatments-radiation fine -side effects awful- tired,nausea and no appetite

    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  6. 6
    • cathy1967
    • Experience with Sarcoma - Adult Soft...
    almost 3 years ago
    cathy1967's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Easier than radiation- 72 hour nausea medication with chemo -can only have 5 -6 treatments with this drug - it causes heart issues

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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