Kevin's Journey with Medulloblastoma

Survivor: Brain and Spinal Cord Tumors in Adults > Medulloblastoma

Patient Info: Finished active treatment more than 5 years ago, Diagnosed: almost 16 years ago, Male, Age: 59

  1. 1
    • Kevin
    • Experience with Medulloblastoma
    over 4 years ago
    Kevin's Avatar

    Diagnosed

    Oh No

    Early on one oncologist said to "get your things in order" he was wrong.

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  2. 2
    • Kevin
    • Experience with Medulloblastoma
    over 4 years ago
    Kevin's Avatar

    Surgery

    Procedure or Surgery

    Considering it was brain surgery - it came out mostly fine.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • Kevin
    • Experience with Medulloblastoma
    over 4 years ago
    Kevin's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    For me, not nearly as bad as the radiation.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  4. 4
    • Kevin
    • Experience with Medulloblastoma
    over 4 years ago
    Kevin's Avatar

    External radiation

    Radiation

    While I know it helped me still be here, it was pretty awful.

    Painless Experience: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  5. 5
    • Kevin
    • Experience with Medulloblastoma
    over 4 years ago
    Kevin's Avatar

    Memory changes

    Side Effects

    This person has yet to add any details about this experience.

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  6. 6
    • Kevin
    • Experience with Medulloblastoma
    over 4 years ago
    Kevin's Avatar

    Everything

    Celebration

    We celebrate a LOT more of everything now!

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  7. 7
    • Kevin
    • Experience with Medulloblastoma
    over 4 years ago
    Kevin's Avatar

    What treatment to have, and where to have it.

    Decision Point

    This one is tough because it your to make, as it should be. However, time is running out and you need to make a decision that will be the most important in your life.

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