Fringetree's Journey with Papillary Carcinoma, Thyroid Cancer

Patient: Thyroid Cancer > Papillary Carcinoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 9 years ago, Female

  1. 1
    • Fringetree
    • Experience with Papillary Carcinoma...
    almost 6 years ago
    Fringetree's Avatar

    Cancer is back/Recurred

    Oh No

    I first had thyroid cancer when I was 20 yrs old. They removed the lump but not the whole thyroid. It returned 4 years ago and I'm now 69. It took 45 years for it to return.

    0 Comments
  2. 2
    • Fringetree
    • Experience with Papillary Carcinoma...
    almost 6 years ago
    Fringetree's Avatar

    Surgery

    Procedure or Surgery

    The more recent occurance was treated with surgery and radiation. The worst part was the low-iodine diet and not having any Synthroid for 6 weeks after surgery and before radiation. I couldn't lift my arms, I was so weak. It took a full year to regain my strength.

    Went as Expected: Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  3. 3
    • Fringetree
    • Experience with Papillary Carcinoma...
    almost 6 years ago
    Fringetree's Avatar

    Other Care

    This person has yet to add any details about this experience.

    0 Comments
  4. 4
    • Fringetree
    • Experience with Papillary Carcinoma...
    almost 6 years ago
    Fringetree's Avatar

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  5. 5
    • Fringetree
    • Experience with Papillary Carcinoma...
    almost 6 years ago
    Fringetree's Avatar

    Decision Point

    I am now frustrated because a Thyroglobulin test each year shows that I still have thryroid cancer in my body but they can't find it. This past year, I had biopsies of lymph nodes and an iodine scan and it showed nothing. But with a total thyroidectomy, my Thyroglobulin test should be zero and it has been between 2.4 and 2.6. The tests this year cost $17,000 of which I had to pay about $1100. I'm really tired of all these tests. I really don't want to have them anymore and if it returns, so be it. It took 45 years for it to return from the first surgery and at age 69, I really don't plan to be around in another 40 years.

    0 Comments