ChristineT's Journey with Non-Hodgkin Lymphoma (NHL)

Survivor: Non-Hodgkin Lymphoma (NHL)

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 9 years ago, Female, Age: 34, Stage II

  1. 1
    • ChristineT
    • Experience with Non-Hodgkin Lymphom...
    over 4 years ago
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    Misdiagnosed

    Oh No

    I went to three different doctors in two states, and all three told me that the symptoms I was describing were nothing to worry about and, more importantly, nonexistent. I had to beg the last doctor to request an MRI for me, and he laughed and said he would but it was a waste of money. Meanwhile, I could tell that whatever was in my throat was getting worse.

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  2. 2
    • ChristineT
    • Experience with Non-Hodgkin Lymphom...
    over 4 years ago
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    Diagnosed

    Oh No

    The MRI scan showed a massive tumor in my throat, and a surgeon let me make an emergency appointment with him. He diagnosed me within 2 seconds and that night I was prepping for surgery.

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  3. 3
    • ChristineT
    • Experience with Non-Hodgkin Lymphom...
    over 4 years ago
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    De-bulking and tracheostomy

    Procedure or Surgery

    The tumor was so large that I could not be put to sleep until the tracheotomy was finished. Once that was done, they put me to sleep and de-bulked the tumor. The tumor was the size of a tennis ball.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • ChristineT
    • Experience with Non-Hodgkin Lymphom...
    over 4 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    The implant of the port was the easiest procedure by far! I was awake during it, and the surgeon implanting it was making me laugh the entire time.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  5. 5
    • ChristineT
    • Experience with Non-Hodgkin Lymphom...
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Because my cancer was so aggressive, the chemotherapy had to be equally aggressive. Every 21 days I moved into the hospital for a week for the chemo. Staying in the hospital sucked, but the nurses were amazing and I had the best care 24/day.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  6. 6
    • ChristineT
    • Experience with Non-Hodgkin Lymphom...
    over 4 years ago
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    Side Effects

    This person has yet to add any details about this experience.

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