Schlegel's Journey with Non-Hodgkin Lymphoma (NHL)

Patient: Non-Hodgkin Lymphoma (NHL)

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: about 12 years ago, Female, Age: 72, Stage IV

  1. 1
    • Schlegel
    • Experience with Non-Hodgkin Lymphoma ...
    over 4 years ago
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    Diagnosed

    Oh No

    This person has yet to add any details about this experience.

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  2. 2
    • Schlegel
    • Experience with Non-Hodgkin Lymphoma ...
    over 4 years ago
    Schlegel's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I devrloped a severe neutropenia and clostridium infection after my first treatment with R-CHOP and I was hospitalized. After that, no problems. I would get the treatment on Monday. On Tuesday I would go to the hospital to get a Neulasta shot, then do home physical therapy all day, then go to band practice at night. The following weekend I did haVE MILD DIARRHEA.

    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
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  3. 3
    • Schlegel
    • Experience with Non-Hodgkin Lymphoma ...
    over 4 years ago
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    Phase 1 - Zevalin and Velcade

    Clinical Trial

    34 month remission. Did develop neuralgia paresthetica, a type of neuropathy, nine months after treatment. I attributed this to the Velcade. Cured a year later by acupuncture.

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  4. 4
    • Schlegel
    • Experience with Non-Hodgkin Lymphoma ...
    over 4 years ago
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    Other

    Celebration

    Two years ago I realized I was seeing the lymphoma as a chronic illness rather than a terminal illness and just not thinking about it as much.

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  5. 5
    • Schlegel
    • Experience with Non-Hodgkin Lymphoma ...
    over 4 years ago
    Schlegel's Avatar

    Other

    Other Care

    I highly recommend going on a cancer retreat. I went to one sponsored by the Smith Center in Washington, D.C. We had a one hour full body massage three times a week. We also had individual and group therapy, writing therapy, art therapy, sand castle, classes on issues related to cancer, yoga classes and much more.

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