fotopet's Journey:

Survivor: Breast Cancer

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 7 years ago, Female, Age: 54, Stage I, HER2 Positive: No, ER Positive: Yes, PR Positive: Yes

  1. 1
    • fotopet
    • Experience with Breast Cancer
    over 4 years ago
    fotopet's Avatar

    Diagnosed

    Oh No

    It was a long haul down the rabbit hole as my diagnosis changed from a single small cancer requiring lumpectomy to multi-focal, bilateral cancer with lymph node involvement, requiring a mastectomy, chemo and rads.

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  2. 2
    • fotopet
    • Experience with Breast Cancer
    over 4 years ago
    fotopet's Avatar

    Lumpectomy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  3. 3
    • fotopet
    • Experience with Breast Cancer
    over 4 years ago
    fotopet's Avatar

    Sentinel lymph node biopsy

    Procedure or Surgery

    At same time as first lumpectomy

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  4. 4
    • fotopet
    • Experience with Breast Cancer
    over 4 years ago
    fotopet's Avatar

    Not clear margins

    Oh No

    Needed reexcision of one side

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  5. 5
    • fotopet
    • Experience with Breast Cancer
    over 4 years ago
    fotopet's Avatar

    Which surgery(ies)

    Decision Point

    Unilateral mastectomy or bilateral? Immediate reconstruction or not? If so, what kind?

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  6. 6
    • fotopet
    • Experience with Breast Cancer
    over 4 years ago
    fotopet's Avatar

    Mastectomy

    Procedure or Surgery

    Unilateral mastectomy with abdominal flap reconstruction and re-excision of other side.

    Went as Expected: Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  7. 7
    • fotopet
    • Experience with Breast Cancer
    over 4 years ago
    fotopet's Avatar

    Breast Reconstruction (Flap)

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  8. 8
    • fotopet
    • Experience with Breast Cancer
    over 4 years ago
    fotopet's Avatar

    Complication of surgery

    Oh No

    Abdominal incision reopened

    0 Comments
  9. 9
    • fotopet
    • Experience with Breast Cancer
    over 4 years ago
    fotopet's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Taxotere and Cytoxin every 3 weeks for 4 rounds

    Easy to Do: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
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  10. 10
    • fotopet
    • Experience with Breast Cancer
    over 4 years ago
    fotopet's Avatar

    Money

    Oh No

    Co-payments for Neulasta shots put us in the hole.

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  11. 11
    • fotopet
    • Experience with Breast Cancer
    over 4 years ago
    fotopet's Avatar

    Allergic reaction

    Side Effects

    Two out of four taxotere infusions had pseudo-anaphalactic reaction. Fun.

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  12. 12
    • fotopet
    • Experience with Breast Cancer
    over 4 years ago
    fotopet's Avatar

    External radiation

    Radiation

    How dare anyone say it's "just" radiation.

    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  13. 13
    • fotopet
    • Experience with Breast Cancer
    over 4 years ago
    fotopet's Avatar

    Hormone therapy

    Drug or Chemo Therapy

    Tamoxifen

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  14. 14
    • fotopet
    • Experience with Breast Cancer
    over 4 years ago
    fotopet's Avatar

    Psychosocial

    Other Care

    This person has yet to add any details about this experience.

    0 Comments
  15. 15
    • fotopet
    • Experience with Breast Cancer
    over 4 years ago
    fotopet's Avatar

    Work problems

    Oh No

    Lost job because of need to take leave of absence to deal with mental breakdown caused by cancer treatment

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  16. 16
    • fotopet
    • Experience with Breast Cancer
    over 4 years ago
    fotopet's Avatar

    Nipple reconstruction

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  17. 17
    • fotopet
    • Experience with Breast Cancer
    over 4 years ago
    fotopet's Avatar

    Finished treatment

    Celebration

    This person has yet to add any details about this experience.

    0 Comments
  18. 18
    • fotopet
    • Experience with Breast Cancer
    over 4 years ago
    fotopet's Avatar

    Surgery

    Procedure or Surgery

    Breast reduction to make them match

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    1 Comment
  19. 19
    • fotopet
    • Experience with Breast Cancer
    over 4 years ago
    fotopet's Avatar

    My mind/Sense of Humor

    Loss

    Mental/emotional breakdown near end of radiation requiring immediate psychiatric treatment.

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