carols' Journey with High-Grade Astrocytoma (also called G...

Caregiver: Brain and Spinal Cord Tumors in Adults > Glioma > Astrocytoma > High-Grade Astrocytoma (also called Glioblastoma)

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: almost 5 years ago, Male, Age: 75

  1. 1
    • carols
    • Experience with High-Grade Astrocytoma ...
    over 4 years ago
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    Diagnosed

    Oh No

    It was a shock. He was always the healthy one. How could he have this!

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  2. 2
    • carols
    • Experience with High-Grade Astrocytoma ...
    over 4 years ago
    carols' Avatar

    Surgery

    Procedure or Surgery

    He tolerated the surgery well. He did wonderful and was back home in less than 72 hours.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • carols
    • Experience with High-Grade Astrocytoma ...
    over 4 years ago
    carols' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Started the Temodar on May 14. Tolerated it good.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  4. 4
    • carols
    • Experience with High-Grade Astrocytoma ...
    over 4 years ago
    carols' Avatar

    External radiation

    Radiation

    He had his mask made and started treatments on May 14. Made him weak and lack of energy.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
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  5. 5
    • carols
    • Experience with High-Grade Astrocytoma ...
    over 4 years ago
    carols' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    After his month off he started the monthly chemo in August. It was a much higher dose than the previous chemo. He did badly. He had no energy, he could barely walk. he had no appetite, he quit eating. The less he ate, the weaker he got. I didn't know what to do anymore. The further out he got from the chemo, he started eating some , therefore things improved. But he still does not eat much. I had palliative home care started.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  6. 6
    • carols
    • Experience with High-Grade Astrocytoma ...
    over 4 years ago
    carols' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    His September chemo was even higher dose than before. He did much better this time. Why? I have no idea, but the doctor said his body would adjust to the drug. He ate fair and had some loss of energy but was still able to do some work outside. The biggest problem is constipation. Need some guidance on this problem.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
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