onegreatchef's Journey:

Patient: Skin Cancer - Melanoma

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: over 6 years ago, Female, Age: 54

  1. 1
    about 6 years ago
    onegreatchef's Avatar

    Diagnosed

    Oh No

    I was originally diaganosed with Metastatic Melanoma from a biopsy on my arm. Was then sent for a PET/CT. The results then were disclosed that I not only had Metastatic Melanoma but also Esophogeal Cancer and that life now was limited to less than 1 year.

    0 Comments
  2. 2
    about 6 years ago
    onegreatchef's Avatar

    Endioscopy

    Procedure or Surgery

    I went for a Endioscopy to see if in fact the Esophogeal Cancer was consuming like they said.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  3. 3
    about 6 years ago
    onegreatchef's Avatar

    Decision Point

    Residing in NC and my family being in California I was trying to go home for further treatment but refused to leave my 2 children behind with a totally irrational X husband. After 3 months I left my job and took my children to San Diego for further treatment.

    0 Comments
  4. 4
    about 6 years ago
    onegreatchef's Avatar

    Health insurance issue

    Oh No

    Upon arrival in San Diego and meeting a Melanoma specialist at the UCSD Moore's Cancer Center I began more testing. Pending insurance issues with the State Another PET/MRI, Brain Scans and much lab work. All these tests were not matching the testing that I had at the Oncology Clinic in Georgia.

    0 Comments
  5. 5
    about 6 years ago
    onegreatchef's Avatar

    Bronchialoscpy? Take a peek inside and biopsy..

    Procedure or Surgery

    So after this procedure I was also diagnosed with Pulminary Sarcoidosysis which is a mimic sister to Cancer. I was then scheduled for Surgery of removal of the Primary Melanoma source.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  6. 6
    about 6 years ago
    onegreatchef's Avatar

    Wide excision surgery

    Procedure or Surgery

    Went for a wide excision surgery. They were expecting to possibly take my left arm off. They prepared me for it. They were also talking a skin graft and major recovery. Went from 6 hour surgery to 2 hours and came out with the arm and missing 7 lymphnodes...THRILLED!

    Went as Expected: Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  7. 7
    about 6 years ago
    onegreatchef's Avatar

    Lymphnodes look good

    Celebration

    Out of surgery and lymphnodes came back as malignant. WE are thrilled! It is a small celebration but we will take it. The side effects are tiring. The surgery went well much better than anticipated. The chunk missing from my arm..can we say "Shark bite!" but I have an arm. The fluid problem with the arm is getting worse. It has been 3 weeks and the pain has increased and the swelling is worse. Now it is onto physical therapy for a sleeve, more pain meds and home treatment. Limiting activity, fatigue and emotions are frustrating. Very depressed at this juncture, but cancer results are looking hopeful.

    0 Comments
  8. 8
    about 6 years ago
    onegreatchef's Avatar

    Decision Point

    It is time to make a therapy choice to start with. Interferon is the doctor's recommendation. Many side effects....con's are : kick up the auto immune disorder being held at bay also unknown, kick up the Sarcoid ultimate death, and of course major depression. Am looking at the 5 year term plan but still taxing.

    0 Comments