Capriness' Journey with Invasive (Infiltrating) Ductal Carcin...

Patient: Breast Cancer > Invasive (Infiltrating) Ductal Carcinoma

Patient Info: Receiving hospice or palliative care, Female, Age: 57, Stage IV, HER2 Positive: No, ER Positive: Yes, PR Positive: Yes

  1. 1
    • Capriness
    • Experience with Invasive (Infiltrati...
    about 5 years ago
    Capriness' Avatar

    Diagnosed

    Oh No

    July 23, 1996. Found a lump while serving in the Peace Corps in Costa Rica.

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  2. 2
    • Capriness
    • Experience with Invasive (Infiltrati...
    about 5 years ago
    Capriness' Avatar

    Lumpectomy

    Procedure or Surgery

    Edges weren't "dirty" but they were too close for the surgeon's comfort. She scheduled another surgery.

    Went as Expected: Disagree
    Minimal Recovery: Not Specified
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Agree
    0 Comments
  3. 3
    • Capriness
    • Experience with Invasive (Infiltrati...
    about 5 years ago
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    Axillary Lymph Node Dissection

    Procedure or Surgery

    5 of 9 nodes were positive.

    Went as Expected: Strongly Agree
    Minimal Recovery: Not Specified
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  4. 4
    • Capriness
    • Experience with Invasive (Infiltrati...
    about 5 years ago
    Capriness' Avatar

    Lumpectomy

    Procedure or Surgery

    She had to take a bigger margin of the original lumpectomy. But this time the new margins were dirty. There was still ore cancer in there.

    Went as Expected: Agree
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  5. 5
    • Capriness
    • Experience with Invasive (Infiltrati...
    about 5 years ago
    Capriness' Avatar

    Chemotherapy

    Drug or Chemo Therapy

    There's nothing good you can say about chemo. Sorry.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  6. 6
    • Capriness
    • Experience with Invasive (Infiltrati...
    about 5 years ago
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    Double Mastectomy

    Procedure or Surgery

    X-rays showed shadows that the doctors couldn't be sure of so I opted to have double mastectomies.

    Went as Expected: Agree
    Minimal Recovery: Not Specified
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  7. 7
    • Capriness
    • Experience with Invasive (Infiltrati...
    about 5 years ago
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    Remission

    Celebration

    Breast tissue from the double mastectomy was completely clean. Since I had the mastectomies after the chemo, that told me that the chemo had worked since the margins from the second lumpectomy had been dirty.

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  8. 8
    • Capriness
    • Experience with Invasive (Infiltrati...
    about 5 years ago
    Capriness' Avatar

    Breast Reconstruction (Flap)

    Procedure or Surgery

    Had tram-flap reconstruction on both breasts. That had to be the most painful surgery I have EVER had! When I woke from surgery I couldn't breathe because the surgery involved trauma to my diaphragm and it didn't want to move. Also I couldn't stand upright. In later years I've always had chronic back pain because my back muscles had to take over holding my torso upright. I don't recommend this surgery to anyone. If you're thinking about having it, please think very hard about it.

    Went as Expected: Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  9. 9
    • Capriness
    • Experience with Invasive (Infiltrati...
    about 5 years ago
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    Cancer is back/Recurred

    Oh No

    Cancer came back in my brachial plexis in 2005. I made it 9 years! XXX! Why??? I was so positive I had been cured!

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  10. 10
    • Capriness
    • Experience with Invasive (Infiltrati...
    about 5 years ago
    Capriness' Avatar

    Surgery

    Procedure or Surgery

    Surgeon had to remove tumor from my brachial plexis which is the nerve bundle in your chest that controls your whole arm. Thank heavens he was able to save my arm functionality. He also had to remove my pectoral minor muscle and about a third of my pectoral major muscle.

    Went as Expected: Agree
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  11. 11
    • Capriness
    • Experience with Invasive (Infiltrati...
    about 5 years ago
    Capriness' Avatar

    External radiation

    Radiation

    I had radiation to my whole right chest and extensive radiation to the tumor site sine the surgeon hadn't got it all because he had wanted to save my arm function. Radiation was fine while I was going through it but after-effects were bad. I had a lot of cracking and bleeding from the burns because I started chemo afterwards which caused the radiation to "flare." Also, it shrunk my right reconstructed breast so much that it's only about half the size of the left one.

    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
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  12. 12
    • Capriness
    • Experience with Invasive (Infiltrati...
    about 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Chemo sucks. What can I say?

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  13. 13
    • Capriness
    • Experience with Invasive (Infiltrati...
    about 5 years ago
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    Cancer is back/Recurred

    Oh No

    2009 cancer came back in my lungs. It's now stage IV.

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  14. 14
    • Capriness
    • Experience with Invasive (Infiltrati...
    about 5 years ago
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    Hormone therapy

    Drug or Chemo Therapy

    I take monthly shots of Faslodex and daily Arimidex tablets. Either the Faslodex or the Arimidex cause me bone pain so I started palliative care to handle the pain.

    Easy to Do: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  15. 15
    • Capriness
    • Experience with Invasive (Infiltrati...
    over 3 years ago
    Capriness' Avatar

    Loss

    This is Teri's brother. We lost Teri today, June 18, 2014 at 11:45am. Thank you all for what you do.

    5 Comments