Srich63300's Journey:

Survivor: Head & Neck/Throat Cancer

Patient Info: Finished active treatment more than 5 years ago, Diagnosed: almost 13 years ago, Female, Age: 72, Stage IV

  1. 1
    • Srich63300
    • Experience with Head & Neck/Throat ...
    over 4 years ago
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    Other

    Oh No

    diagnosis of 2nd cancer, not related to first - took a year to find it...how much easier or different would it have been if it had been found sooner?

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  2. 2
    • Srich63300
    • Experience with Head & Neck/Throat ...
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    cisplatin was relatively easy, although much more dangerous - 5FU required a pump for a week at a time...another tube to deal with, along with PEG tube, etc...required a bit of adjusting, inconvenience in accomodating tubes, but with anti nausea meds, not too uncomfortable

    Easy to Do: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • Srich63300
    • Experience with Head & Neck/Throat ...
    over 4 years ago
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    External radiation

    Radiation

    breast cancer radiation was not much, sunburn type burn, manageable - head neck cancer radiation was something else again - being covered by the necessary mask, bolted to a table, neck stretched when you are already having trouble breathing and swallowing is another issue...not painful in itself...just those issues...did not lose hair except on back of head from exit radiation...

    Painless Experience: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • Srich63300
    • Experience with Head & Neck/Throat ...
    over 4 years ago
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    Hyperbaric Oxygen Treatment

    Other Care

    Can't say enough about this to heal - had third and fourth degree burns inside throat and outside neck - helped immensely with healing these to enable me to get back closer to "normal"

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  5. 5
    • Srich63300
    • Experience with Head & Neck/Throat ...
    over 4 years ago
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    Body part/function

    Loss

    first loss is control of life...second is feeling somewhat scared and abandoned when treatment is finished...third is various adjustments to be made to life with side effects...takes a good year to get back energy, etc...in my case...scar tissue in throat, lack of salivary glands, learning to eat again, and what you can and can't eat, change of taste, etc

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  6. 6
    • Srich63300
    • Experience with Head & Neck/Throat ...
    over 4 years ago
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    Other

    Side Effects

    loss of salivary glands, peripheral neuropathy, fatigue, mouth dryness, mouth sores, swallowing problems, thyroid changes, taste changes, chemo brain

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