tinydotz's Journey with Colorectal (Colon) Cancer

Survivor: Colorectal (Colon) Cancer

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 9 years ago, Female, Age: 59, KRAS mutation positive: Don't Know, BRAF mutation positive: Don't Know, Stage IV

  1. 1
    • tinydotz
    • Experience with Colorectal (Colon) Ca...
    about 5 years ago
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    Colostomy

    Procedure or Surgery

    I did not have time to think about what was happening. I went into the ER with bad pains, they did a CTScan and found I had a blockage. The Dr. said it was atumor and needed to be removed ASAP. I just did what the Dr.s told me I needed to do.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
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  2. 2
    • tinydotz
    • Experience with Colorectal (Colon) Ca...
    about 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    They said I wouldn't lose my hair, which I didn't. It did thin out, I losdid not go bald. I needed to stay away from cold things. I could not drink or touch anything cold.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  3. 3
    • tinydotz
    • Experience with Colorectal (Colon) Ca...
    about 5 years ago
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    External radiation

    Radiation

    Three months after starting chemo for the colon they found that the cancer on my back (near my spine) was growing. So I had to stop chemo and do radiation for 10 days. After the radation I went back to chemo, but a different kind.

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  4. 4
    • tinydotz
    • Experience with Colorectal (Colon) Ca...
    about 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    With this round of chemo I got sick more and more. I felt fine at first but as time went on I seem to get sicker and sicker with the treatments.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  5. 5
    • tinydotz
    • Experience with Colorectal (Colon) Ca...
    about 5 years ago
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    Chemo brain

    Side Effects

    The first round of chemo I could not touch or drink anything cold. If I went into a refridgerator I had to wear gloves. If I drank something cold my throat closed right up. If I felt cold it was like being shocked, a tingling/pin sensation. With the second round I tended to get sick after the 3/4 week of chemo. It got worse as tie went on. It started with just feeling nausea, but being able to function. As I continued chemo it got worse, I not only felt nausea I was tired and week.

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  6. 6
    • tinydotz
    • Experience with Colorectal (Colon) Ca...
    about 5 years ago
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    Taking a break from chemo

    Decision Point

    After a year and a hlaf of chemo the Dr. thought he would let my body rest from the chemo. He thought maybe 6 months would be ok for a break. It has been 3 years and I and still on break from chemo. I go for scans every 3-6 months and the cancer is stable. The Dr. says as long as everything stays the same I can stay off chemo. If anything changes then I will probably have to do treatments again. I am monitored every 3 months with blood work and now 6 months with CTScans.

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