KayC's Journey with Lung Carcinoid Tumor

Spouse/Partner: Lung Carcinoid Tumor

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: over 10 years ago, Male, Age: 74

  1. 1
    • KayC
    • Experience with Lung Carcinoid Tumor
    over 5 years ago
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    Misdiagnosed

    Oh No

    When we went to ER in 2007 we were thinking gall bladder issues. How surprising to find out that the liver tumurs were considered mets from a lung tumor. We had been told the lung "tumor" was a weird fungus.

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  2. 2
    • KayC
    • Experience with Lung Carcinoid Tumor
    over 5 years ago
    KayC's Avatar

    Y90 Sir Spheres

    Procedure or Surgery

    This procedure has been done 4 times with good results each time. But probably can not be done again.

    Went as Expected: Strongly Agree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  3. 3
    • KayC
    • Experience with Lung Carcinoid Tumor
    over 5 years ago
    KayC's Avatar

    Cancer has spread/Metastasized

    Oh No

    During this 4 year journey 2 brain tumors were discovered. Brain surgery done; Gamma Knife also used to treat one of the tumors. Other tumors are present on the spleed, adrenal gland, and a few external sites. External tumors have been surgically removed.

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  4. 4
    • KayC
    • Experience with Lung Carcinoid Tumor
    over 5 years ago
    KayC's Avatar

    Clinical Trial

    Recently began taking Afinitor due to tumor growth of the primary lung tumor. Only been on this treamtent for 2 weeks. Doing pretty good so far. Am very anxious to have labs drawn next week to see the effects of the Afinitor.

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