Filbeck626's Journey with Bone Cancer

Survivor: Bone Cancer

Patient Info: Finished active treatment more than 5 years ago, Diagnosed: over 35 years ago, Male, Age: 50

  1. 1
    over 4 years ago
    Filbeck626's Avatar

    Diagnosed

    Oh No

    I was 15 years old when I was diagnosed with Ewings Sarcoma bone cancer. I was in the prime of my teenage years getting ready to start high school. This was the most dramatic thing I had ever experienced, but there was much more to come.

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  2. 2
    over 4 years ago
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    Bone Marrow Harvest

    Procedure or Surgery

    The initial pain was terrible. I had bone marrow taken out of 5 spots on my hip. Up to that point, that was the most pain I had ever endured. The recovery was hard work since I had severe pain to move, walk and even just sitting. Later in life I have had noticed pain in that region with any heavy lifting.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    During my treatment with chemotherapy I received 6 different types of medication. The worst was Cytoxan. I took oral, IV push and IV drip medications. Of course I lost all my hair (many times). In the 1980's and being 15 years old, being bald wasn't so cool. A minor price to pay for saving my life.

    Easy to Do: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Neutral/NA
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  4. 4
    over 4 years ago
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    Hair loss (alopecia)

    Side Effects

    I had several side affects with chemo. I had great weight loss, I think mostly due to my inability to eat because of being sick from the medication. I also developed hepatitis because of a low white blood cell count. The most dramatic thing for me was of course the hair loss. I remember waking up during the night with a pillow covered in hair. I could grab a large clump of hair out at one time. I would try to be funny and pull some hair out and drape it over my upper lip and say that it was a fu manchu mustache. My parents hated when I would do that, had to get some humor some how

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  5. 5
    over 4 years ago
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    External radiation

    Radiation

    My Ewings Sarcoma tumor was just above my right elbow. I had radiation treatments to the tumor. There was no side affect. I did get a cool tan from it. The side affect with radiation is that there was damage done to the surrounding muscle tissue. I am really glad i was 15 when I received the radiation treatment (I was almost done growing). There is a noticeable difference in the side of right arm from the left one. Over the years I have learned to compensate and it does not affect me on a daily basis, expect for the size difference. Again a minor side affect in exchange for my life.

    Painless Experience: Strongly Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
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  6. 6
    over 4 years ago
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    Finished treatment

    Celebration

    I am 28 years completely cancer free. I was much more fortunate that some of the others that were experiencing Ewings Sarcoma at the same time I was undergoing treatment. Some of the friends that I made during diagnosis and treatment did not survive the fight. I was so fortunate and I give thanks to St. Jude's for developing the treatment and Shands Teaching Hospital for administering the treatment. I give thanks to my family that was with me during that horrific time. Above all I give thanks to GOD who brought me through this. He enabled me to live, when my new friends did not.

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