Donna1115's Journey with Triple-Negative Breast Cancer, Lobular

Survivor: Breast Cancer > Invasive Lobular Carcinoma > Triple-Negative Breast Cancer

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 10 years ago, Female, Age: 62, Stage II, HER2 Positive: No, ER Positive: Yes, PR Positive: Yes

  1. 1
    • Donna1115
    • Experience with Triple-Negative Brea...
    about 5 years ago
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    Diagnosed

    Oh No

    This person has yet to add any details about this experience.

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  2. 2
    • Donna1115
    • Experience with Triple-Negative Brea...
    about 5 years ago
    Donna1115's Avatar

    what type of surgery to have

    Decision Point

    I wish at the time you have to make your decision that you are given someone to talk to about all types of surgery and the after affects. There is more to just removing the cancer, there are ongoing psycological issues with have Cancer that need to be addressed at the time of diagnosis. I was given 2 weeks from diagnosis to when surgery was performed. I had to decide what type of surgery within 2 days of being diagnosed what type of surgery I would have. I was a borderline patient for a lumpectomy. If I would have known at the time more about ILC and the recurrence of it I would have chosen a double masectomy vs a lumpectomy.

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  3. 3
    • Donna1115
    • Experience with Triple-Negative Brea...
    about 5 years ago
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    Lumpectomy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
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  4. 4
    • Donna1115
    • Experience with Triple-Negative Brea...
    about 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    the 1st round of Chemo took my blood levels did not come back fast enough and I developed high fevers and an infection. Had to have daily antibiotic drips for a week for the infection. This was the only major side affect that I experienced. My support team had advised me to listen carefully to the Oncology team and follow every instruction that they gave me. I had several different oral medications that I took during Chemo to reduce all the other side affects.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  5. 5
    • Donna1115
    • Experience with Triple-Negative Brea...
    about 5 years ago
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    External radiation

    Radiation

    The treatment was painless but the burn from the radiation was not. There was blistering that was quite painful. I also developed shingles while taking radiation. The radiation took all my energy away. All I wanted to do was sleep.

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
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  6. 6
    • Donna1115
    • Experience with Triple-Negative Brea...
    about 5 years ago
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    Targeted therapy

    Drug or Chemo Therapy

    I am stil on Aromasin. I was on Tamoxofin, Femara, and Arimidex. I did not tolerate any of these three. The Aromasin has had less side affects, but they get worse the longer you take the drug. I have severe headaches, muscle cramping and have had a significant weight gain.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  7. 7
    • Donna1115
    • Experience with Triple-Negative Brea...
    about 5 years ago
    Donna1115's Avatar

    see below many

    Side Effects

    Weight Gain, headaches, muscle cramps, extreme tenderness at scar sites that were radiated, second surgery for extreme inversion of nipple caused by the 1st surgery, foggy memory at times.

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