JackofALL's Journey with B-Cell, Acute Lymphocytic Leukemia

Survivor: Leukemia > Acute Lymphocytic Leukemia (ALL) > B-Cell

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 8 years ago, Female, Age: 30

  1. 1
    • JackofALL
    • Experience with B-Cell, Acute Lympho...
    over 4 years ago
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    Misdiagnosed

    Oh No

    Fatty liver, nope cancer. Oops.

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  2. 2
    • JackofALL
    • Experience with B-Cell, Acute Lympho...
    over 4 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    It took quite some time to get the little guy to work. "Stand, dance, wiggle, cough-then we can get your blood."

    Went as Expected: Disagree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Agree
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  3. 3
    • JackofALL
    • Experience with B-Cell, Acute Lympho...
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Clinical trial-pediatric protocol for adults. Successfully attain remission, but ravaged by chemotherapy and steroids for almost 3 years. Bald as Buddha until a year of maintenance therapy.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • JackofALL
    • Experience with B-Cell, Acute Lympho...
    over 4 years ago
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    Other

    Clinical Trial

    Pediatric protocol for adults. Quite intense. Modifications were appreciated. A unique and intimate connection to cancer research, but not without a few risks, including a code blue anaphylaxis Allergic reaction to IV Pegaspargase-leading to an alternative of 3 painful IM shots at once, for weeks.

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  5. 5
    • JackofALL
    • Experience with B-Cell, Acute Lympho...
    over 4 years ago
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    Anemia (low red blood cell counts)

    Side Effects

    All of the above. Including AVN in both hips.

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  6. 6
    • JackofALL
    • Experience with B-Cell, Acute Lympho...
    over 4 years ago
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    Celebration

    I completed my treatment 5/2011!

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  7. 7
    • JackofALL
    • Experience with B-Cell, Acute Lympho...
    over 4 years ago
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    Other Care

    Recently had a hip replacement. Steroids/chemo induced AVN became severely problematic exactly a year after finishing treatment

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