skyeblue's Journey with Appendix Cancer

Patient: Rare Cancers > Appendix Cancer

Patient Info: Prefer not to answer/not applicable/unsure, Diagnosed: about 6 years ago, Female, Age: 56

  1. 1
    • skyeblue
    • Experience with Appendix Cancer
    about 5 years ago
    skyeblue's Avatar

    Money, doctor, no support, symptoms???

    Oh No

    I lost my father in February of 2011 and because of the problems with the estate, my health went down from there. As the year got warmer I realized that these physical manifestations were not just grief. I started going to the doctor, and she saw no problems. As it became summer, the symptoms got worse, including a stabbing pain in my side (I thought was my ovary) and some bloating. I got the doctor to do a CA-125 but it came back negative. I got the doctor to do a barium enema, but that, too, came back negative. Two different nurses YELLED at me "there's nothing wrong with you!" Finally, I walked into the clinic and demanded an ultrasound. I was convinced it was ovarian cancer. The ultrasound showed mulitple tumors and I was scheduled for surgery. They did a laproscopic surgery and found the problem was not my ovary, but my appendix. The next day they tore me open and cut out the "gooey" appendix and 6" of my colon. It was a long, hard recovery. And now I have lots of symptoms. There have been adenomas found around my body. But there is no chemo for this cancer, so they are waiting to see what grows. Meanwhile, I am psychologically and physically very changed and have lost all my body confidence - plus confidence in the medical establishment. I don't have insurance, and am one of the many unemployed, though I get some temporary work. So I have almost no income and obviously don't have good health coverage. The doctor I have seen treats me like a potential law-suit and not a patient. She keeps saying "YOU have to make the decision!" But then doesn't give me enough information to make major medical decisions. I'm always on the internet researching, trying to be my own doctor, which is stressful! And my body has all kinds of problems - part of the cancer? Leftovers from the surgeries? Something else? I don't know. I am single without a support system. But before all this ugliness I was once a sunny, bright, creative person. What's Next?

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  2. 2
    • skyeblue
    • Experience with Appendix Cancer
    about 5 years ago
    skyeblue's Avatar

    Other

    Side Effects

    Bad memory, problems with digestion, fingernails breaking, soft tissues fragile, sometime extreme fatigue - are these all common after a major surgery? (It's been nearly a year!)

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  3. 3
    • skyeblue
    • Experience with Appendix Cancer
    over 4 years ago
    skyeblue's Avatar

    Decision Point

    It's that time again- I need a CT and a colonoscopy. I'm still paying from the last one. No insurance, didn't work December or January and have a low, part-time job now. Pay for the scans or wait and hope I get a job, get insurance, find a program to help . . .

    1 Comment