lebeau22's Journey:

Survivor: Thyroid Cancer > Medullary Thyroid Carcinoma > Familial

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: over 7 years ago, Female, Age: 38

  1. 1
    • lebeau22
    • Experience with Familial, Medullary T...
    over 5 years ago
    lebeau22's Avatar

    Diagnosed

    Oh No

    Initial doctor appointment to realize there was something growing in my lungs

    0 Comments
  2. 2
    • lebeau22
    • Experience with Familial, Medullary T...
    over 5 years ago
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    Surgery

    Procedure or Surgery

    Lung surgery to biopsy tumors and understand what they were

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  3. 3
    • lebeau22
    • Experience with Familial, Medullary T...
    over 5 years ago
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    Misdiagnosed

    Oh No

    Initially misdiagnosed with a lung cancer. Luckily a pathologist asked about my thyroid and they found a nodule there as well.

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  4. 4
    • lebeau22
    • Experience with Familial, Medullary T...
    over 5 years ago
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    Surgery

    Procedure or Surgery

    Total thyroidectomy to remove cancerous cells in thryoid gland.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Neutral/NA
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  5. 5
    • lebeau22
    • Experience with Familial, Medullary T...
    over 5 years ago
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    Diagnosed

    Oh No

    Discovered I have a very rare form of thyroid cancer, medullary thyroid carcinoma (MTC), and that it had metastasized to both my lungs.

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  6. 6
    • lebeau22
    • Experience with Familial, Medullary T...
    over 5 years ago
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    Decision Point

    Had to go doctor shopping to find someone who is an expert in dealing with this rare cancer.

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  7. 7
    • lebeau22
    • Experience with Familial, Medullary T...
    over 5 years ago
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    Found excellent doctor

    Celebration

    Was able to find an excellent doctor, Marcia Brose, at the University of Pennsylvania.

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  8. 8
    • lebeau22
    • Experience with Familial, Medullary T...
    over 5 years ago
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    Cancer has spread/Metastasized

    Oh No

    After a year of stable disease I found out the cancer was starting to grow.

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  9. 9
    • lebeau22
    • Experience with Familial, Medullary T...
    over 5 years ago
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    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  10. 10
    • lebeau22
    • Experience with Familial, Medullary T...
    over 5 years ago
    lebeau22's Avatar

    Clinical Trial

    I decided to start on an experimental drug called sorafenib that has shown progress in helping to halt progression in advanced thyroid cancer.

    1 Comment
  11. 11
    • lebeau22
    • Experience with Familial, Medullary T...
    over 5 years ago
    lebeau22's Avatar

    Mildstone

    Celebration

    Had the 2 year anniversary of the doctor appointment in which I was told that I had 1-2 years to live!

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