walburton's Journey with Sarcoma - Adult Soft Tissue Cancer

Survivor: Sarcoma - Adult Soft Tissue Cancer

Patient Info: Finished active treatment more than 5 years ago, Diagnosed: over 12 years ago, Male, Age: 74, Stage IV

  1. 1
    • walburton
    • Experience with Sarcoma - Adult Soft...
    over 4 years ago
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    Diagnosed

    Oh No

    Discovered a Very large tumor in my leg after several months of tests . Malignant

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  2. 2
    • walburton
    • Experience with Sarcoma - Adult Soft...
    over 4 years ago
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    Surgery

    Procedure or Surgery

    7 hours of surgery to remove the tumor from my thigh left me with 6 months of radiation and chemo.. 3rd degree burns of my leg caused low white count resulting in 104 fever and hospitalized .. Difficult trying to reduce fever... Doctors worried but I didnt... Survived this and the other negative things I went thru.. 6 months of XXX.

    Went as Expected: Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • walburton
    • Experience with Sarcoma - Adult Soft...
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Sitting in a bed ffor 6 hours for 4 days each left me with a terrible feeling and low white count 2 days after treatment. Nose was bleeding and blood was thin. Platlat and blood transfusions were required to save me. Chemo treatment can be very difficult and has permanent side effects... ie.. kidney failure....no hair etc.

    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • walburton
    • Experience with Sarcoma - Adult Soft...
    over 4 years ago
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    Radiation

    created 3rd degree burns and had to be admitted into the hospital for last minute survival tactics by using several antibiotics ..... Damages skin, muscle and also upper thigh . Damaged left testicle from error of use of the radiation machine. More supervision is needed.

    Painless Experience: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  5. 5
    • walburton
    • Experience with Sarcoma - Adult Soft...
    over 4 years ago
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    Many

    Side Effects

    Side effects of Chemo and radiation and major surgery is considerable coverning just about everything.. Im lucky I survived and lucky that I can walk after having so much of my thigh removed.

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  6. 6
    • walburton
    • Experience with Sarcoma - Adult Soft...
    over 4 years ago
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    Relationship

    Loss

    Result of my surgery on my thigh and the mistakes make radiating my leg has caused permanent loss of sexual drive.

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  7. 7
    • walburton
    • Experience with Sarcoma - Adult Soft...
    over 4 years ago
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    ACS

    Other Care

    Going thru this terrible event I contacted the ACS who informed me that they couldnt help me.. I was completely shocked to hear they give money to research and companies for cancer treatment, but nothing for patients. I was very disappointed.. Since then I think they are doing a bit more to help patients..perhaps resulting from a letter I wrote to the Association Management.

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