codiem's Journey with Papillary Carcinoma, Thyroid Cancer

Survivor: Thyroid Cancer > Papillary Carcinoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 6 years ago, Female, Age: 30, Stage I

  1. 1
    • codiem
    • Experience with Papillary Carcinoma, Th...
    about 5 years ago
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    Diagnosed

    Oh No

    My primary Dr. did an ultra sound of my thyroid because I have hoshimotos (hypothyroidism). When looking at the results, he told me I had nodules he wanted looked at, but truly didn't think were cancer (I was told 5% chance they were). Three days after my 25th birthday I was diagnosed. My husband was deployed in Iraq at the time and I was forced to give him the news via Skype. I felt so guilty. It was my best friend's birthday, my husband was deployed, and none of our family lives close by. I hated having to tell them all from so far away.

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  2. 2
    • codiem
    • Experience with Papillary Carcinoma, Th...
    about 5 years ago
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    Surgery

    Procedure or Surgery

    I had a total thyroidectomy and they removed the lymphnodes along my wind pipe. My husband was sent home to be there and a lot of our family came down to help. I was sent home the same day and it only took about 3 days to recover. Prior to this I had hypothyroidism, so I had an idea of how it would effect my daily life... tired, mood swings, forgetfulness, etc... but I could never be prepared for the extent I have felt it. It's an every day struggle. I have to focus on remembering things (esp. meds) and remember that if everyone around me is making me upset, chances are it's me. The hardest part is having 2 small kids and feeling like I am constantly exhausted.

    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • codiem
    • Experience with Papillary Carcinoma, Th...
    about 5 years ago
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    Hair loss (alopecia)

    Side Effects

    I had broken my elbow and had surgery just a month before my thyroid surgery. Up until this point I had never had any medical problems, broken bones, surgeries, or even stitches in my life. My body had been put through too much in a short period of time, and I began to lose my hair in spots. Thankfully, I'm a hairstylist and was able to hide it, but it was still troubling.

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  4. 4
    • codiem
    • Experience with Papillary Carcinoma, Th...
    about 5 years ago
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    Internal radiation

    Radiation

    I had radioactive iodine. I have to say, this was the worst part of my treatment! 2 weeks prior to the radiation I had to go on a low iodine diet. My kids wouldn't eat a lot of what I was allowed to eat, so I had to make multiple meals. I'll be the first to admit I'm a very picky eater, so this diet was pretty rough on me. There were days when I only ate 500 calories all day. I then had to be away from my kids for 3 days. My husband had to go back to deployment, so this was hard on all of us. I was sick for roughly 2 weeks after treatment from the radiation and getting back on a normal diet.

    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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