MaryD's Journey:

Survivor: Bile Duct (Cholangiocarcinoma) Cancer

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 7 years ago, Female, Age: 63

  1. 1
    • MaryD
    • Experience with Bile Duct (Cholangiocarc...
    over 4 years ago
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    Surgery

    Procedure or Surgery

    At first I was so scared, the pain and the long incision...ugh! But gradually I began to recover ....and now in remission since 8/09

    Went as Expected: Strongly Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Agree
    1 Comment
  2. 2
    • MaryD
    • Experience with Bile Duct (Cholangiocarc...
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    The day of chemo was horrible the first night my legs hurts so much and could not sleep. Then in a few days I began to feel a little better. But the wind on my skin felt like broken glass, and when I drank cold water, felt like I swallowed glass. and just when I felt great, it would start all over again. This went on for about nine months. I still have side effects, like memory loss, pain on the bottom of my feet, headaches, but I tolerate them. And gave Thanks to God I am alive.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  3. 3
    • MaryD
    • Experience with Bile Duct (Cholangiocarc...
    over 4 years ago
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    Chemo brain

    Side Effects

    beside the CHemo brain, horrible leg pain on the day of Chemo, and sleepness, all over body pain (still have that) ...confusion, nausea, itchy...But I huing in there

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  4. 4
    • MaryD
    • Experience with Bile Duct (Cholangiocarc...
    over 4 years ago
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    I made a decsion to LIVE

    Decision Point

    Even though I still have side effects, I make it a point to get out of bed every morning, (and I got a rescue dog "Missy) and I walk twice a day. I joined the Women's Auxiliary with the American Legion, and volunteer once in a while at City of Hope....Life goes on and so do I.

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  5. 5
    • MaryD
    • Experience with Bile Duct (Cholangiocarc...
    over 4 years ago
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    Remission

    Celebration

    I am in remission now 4yrs and nine months. I still have pain all ove my body some days are bad, but I lerned to tolrate. I keep busy by volunteering and walks for hope. I am celebrating that fact I am able to still enjoy life as I know it....

    1 Comment
  6. 6
    • MaryD
    • Experience with Bile Duct (Cholangiocarc...
    over 4 years ago
    MaryD's Avatar

    Job

    Loss

    I did actually lose friends, cause they sometimes don't know what to say to me. Maybe cause I don't work anymore. I also lost a couple of close freinds to cancer...I feel guilty cause I'm still here....but I hold my head up and thank God everyday of another breath.

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  7. 7
    • MaryD
    • Experience with Bile Duct (Cholangiocarc...
    over 2 years ago
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    Remission

    Celebration

    EVEN THOUGH I AM IN REMISSION, I STILL PANIC WHEN I GET THAT PAIN IN MY RIGHT UPPER QUAD. But I still thank God for each breath I take.

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  8. 8
    • MaryD
    • Experience with Bile Duct (Cholangiocarc...
    over 2 years ago
    MaryD's Avatar

    Money

    Oh No

    I am on SSDI, and lost my retirement/401 because I had to use it for the first cancer in 2006, and I had to sell my home...I try to find work, but no one hires 55+ people...no matter how much experience I have, and I have great work ethic...ugh! .... But hey I somehow make it anyway. with $70.00 LEFT AFTER AOYING BILLS THATS FOOD. I'M STILL STANDING.

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  9. 9
    • MaryD
    • Experience with Bile Duct (Cholangiocarc...
    over 2 years ago
    MaryD's Avatar

    Radiation

    This person has yet to add any details about this experience.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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