mar9149's Journey with Breast Cancer

Patient: Breast Cancer

Patient Info: Finished active treatment more than 5 years ago, Diagnosed: over 11 years ago, Female, Age: 67, Stage 0, HER2 Positive: Don't Know, ER Positive: Don't Know, PR Positive: Don't Know

  1. 1
    • mar9149
    • Experience with Breast Cancer
    over 4 years ago
    mar9149's Avatar

    Double Mastectomy

    Procedure or Surgery

    My gynecologist ordered mamograms and sonograms every six months for three years. The doctor who read them told me to go back to a regular yearly schedule. I did and ended up having a double mastectomy. I had chosen a surgeon, but my doctor told me I needed a breast specialist and could not use the doctor I had chosen (who actually WAS a breast specialist). He sent me to another surgeon and two weeks later joined her practice (she was a general surgeon, not a breast specialist, but no one told me that). I spent months being treated by other doctors in this large practice for the infections I got every time one of them touched me. When I went to a doctor outside of their practice, they cancelled my nursing service and therefore I could receive no more saline or heparin to keep my pic line open. The port was too infected to use. The plastic surgeon in this practice "reconstructed" my breasts by putting one two inches higher than the other and one far to the right and the other practically under my left arm. I tried another doctor, but he was unable to undo the damage that had been done. Today I have no breasts and no way to wear a prosthesis since they left no "ridge" to keep a bra in place. Wherever I go, I am called "sir". If I had it to do over, I would have preferred no surgery and taking my chances with cancer.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
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  2. 2
    • mar9149
    • Experience with Breast Cancer
    over 4 years ago
    mar9149's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    Difficult because the port was infected and I had to leave the practice to go to a wound care specialist. When I told the infectious diesease specialist who had me receiving IV antibiotics twice a day that the new doctor had actually taken a culture and found that the infection was resistant to the medication, he cancelled all my services from the nursing service that came to change my dressings and supplied my saline and heparin.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
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