clara's Journey with Low-grade Astrocytoma

Survivor: Brain and Spinal Cord Tumors in Adults > Glioma > Astrocytoma > Low-grade Astrocytoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 10 years ago, Female, Age: 27

  1. 1
    • clara
    • Experience with Low-grade Astrocytoma
    over 4 years ago
    clara's Avatar

    Diagnosed

    Oh No

    When I Was 16 I was diagnosed and didn't have no idea what was expecting me

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  2. 2
    • clara
    • Experience with Low-grade Astrocytoma
    over 4 years ago
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    Biopsy

    Procedure or Surgery

    After the biopsy I lost the sensation of my right arm

    Went as Expected: Neutral/NA
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  3. 3
    • clara
    • Experience with Low-grade Astrocytoma
    over 4 years ago
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    Internal radiation

    Radiation

    During radiation had strong headache, back pains, couldnt feed myself and my mom had to wash me, had allergic reation looking like acne.

    Painless Experience: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • clara
    • Experience with Low-grade Astrocytoma
    over 4 years ago
    clara's Avatar

    Taste change/loss

    Side Effects

    i lost the ability to taste for 3 or 4 months

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  5. 5
    • clara
    • Experience with Low-grade Astrocytoma
    over 4 years ago
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    Cancer is back/Recurred

    Oh No

    After I had 28 radiation the cancer came back after 4 and a half months

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  6. 6
    • clara
    • Experience with Low-grade Astrocytoma
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    During the time of treatment I had to live in the USA away from home and had to delay entering to college, lost my hair

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  7. 7
    • clara
    • Experience with Low-grade Astrocytoma
    over 4 years ago
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    Allergic reaction

    Side Effects

    once due to plateles tranfusion

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  8. 8
    • clara
    • Experience with Low-grade Astrocytoma
    over 4 years ago
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    Anemia (low red blood cell counts)

    Side Effects

    had many times blood transfusion

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  9. 9
    • clara
    • Experience with Low-grade Astrocytoma
    over 4 years ago
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    Bone fracture or break

    Side Effects

    broke my ankle during chemo treatment

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  10. 10
    • clara
    • Experience with Low-grade Astrocytoma
    over 4 years ago
    clara's Avatar

    Constipation

    Side Effects

    due the chemo

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  11. 11
    • clara
    • Experience with Low-grade Astrocytoma
    over 4 years ago
    clara's Avatar

    Depression/Anxiety

    Side Effects

    when i was in treatment it got delay many times and the period that i had to stay away from home was many times extended, felt sometimes to give up and just going home, had many times to change fly tickects because i wasn't finish with the chemo period or i was sick at the hospital.

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  12. 12
    • clara
    • Experience with Low-grade Astrocytoma
    over 4 years ago
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    Flu-like symptoms (fever, chills, sweats)

    Side Effects

    when i felt like this usually i had to be admitted to the hospital because of the port that i had.

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  13. 13
    • clara
    • Experience with Low-grade Astrocytoma
    over 4 years ago
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    Fatigue (tiredness)

    Side Effects

    the day after the chemo i didn't even felt the strength to get up from bed

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  14. 14
    • clara
    • Experience with Low-grade Astrocytoma
    over 4 years ago
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    Hair loss (alopecia)

    Side Effects

    after i started chemo my hair started to fall so i decide to shave my hair it was less traumatic then seing every day a big cuantity of hair falling

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  15. 15
    • clara
    • Experience with Low-grade Astrocytoma
    over 4 years ago
    clara's Avatar

    Low platelet counts (thrombocytopenia)

    Side Effects

    This person has yet to add any details about this experience.

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  16. 16
    • clara
    • Experience with Low-grade Astrocytoma
    over 4 years ago
    clara's Avatar

    Low white blood cell counts (neutropenia)

    Side Effects

    one of the main causes why my treatment was delay

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  17. 17
    • clara
    • Experience with Low-grade Astrocytoma
    over 4 years ago
    clara's Avatar

    Nausea/Vomiting

    Side Effects

    the 2 days after the chemo always felt really nauses, i didn't vomit many times because my mom help me by telling me everytime i was about to do it you are not going to vomit

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  18. 18
    • clara
    • Experience with Low-grade Astrocytoma
    over 4 years ago
    clara's Avatar

    Saliva changes (thick saliva)

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  19. 19
    • clara
    • Experience with Low-grade Astrocytoma
    over 4 years ago
    clara's Avatar

    Mood changes

    Side Effects

    sometimes felt really angry and sad, steroids can make you feel really mad and get you really anxious

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  20. 20
    • clara
    • Experience with Low-grade Astrocytoma
    over 4 years ago
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    Pain

    Side Effects

    in the joints

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  21. 21
    • clara
    • Experience with Low-grade Astrocytoma
    over 4 years ago
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    Cancer is shrinking

    Celebration

    God made a miracle, chemo couldn't shrink the cancer but when i finish the treatment it said that was smaller!!!! Glory to God

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  22. 22
    • clara
    • Experience with Low-grade Astrocytoma
    over 4 years ago
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    Finished treatment

    Celebration

    went to six flags with aunts and cousins to celebrate that i was finally done!!!

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  23. 23
    • clara
    • Experience with Low-grade Astrocytoma
    over 4 years ago
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    Hair is back

    Celebration

    I have my long hair back!

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  24. 24
    • clara
    • Experience with Low-grade Astrocytoma
    over 4 years ago
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    Other Care

    This person has yet to add any details about this experience.

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