Angeleyes811's Journey:

Survivor: Non-Hodgkin Lymphoma (NHL)

Patient Info: Finished active treatment more than 5 years ago, Diagnosed: over 20 years ago, Female, Age: 74, Stage III

  1. 1
    over 4 years ago
    Angeleyes811's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I knew something was wrong with me for two years before they found the cancer. Doctors kept telling me it was stress, anxiety and put me on xanax. I started having panic attacks so they added Paxil. It took a nurse practitioner to tell me something was really wrong with me and that it was not my imagination. She sent me right to the hospital to have an ultra sound. They found something in the ultra sound and had me do a CT scan. They sent me home and said they were sure I would be okay for the weekend. Come back Monday, they wanted to do another CT scan. After the 2nd scan they sent me home. A few hours later I got a call to come to the hospital cancer center. I was petrified. They did the first biopsy using a CT scan but could not get to the tumor. Next they did a bone marrow which was very painful because I was wide awake. They finally put me to sleep and did a laproscopic surgery. The cancerous tumor was slow growing and had grown around my spine. This time they got enough of the tumor to tell me it was non hodgkins lymphoma. They could not operate because of the location and they couldn't do radiation so I had 6 months of aggressive chemotherapy. It was called CHOP, 4 very potent drugs. After the chemo, the first couple days were fine, no nausea, but I took medicine to help that. Starting the third day and for almost two weeks I had excruciating bone pain and jaw pain, couldn't sleep the first 5 days because of the prednizone, felt like a computer going off in my head, couldn't find any way to ease the pain. After the 2nd week I could go out and walk and do normal things but then came the third week and time for another treatment. I really thought I was going to die, when all my hair fell out, all I could do was cry. After the third chemo treatment, I made up my mind I was going to live.I am a survivor. I survived two blood clots in my lungs before the cancer so I could surviv this. It would have been nice to have someone to talk to who could have told me I was not alone. Unless you are going through cancer, no one can understand what is happening and even though they want to help, they cannot understand how bad the pain was

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  2. 2
    over 4 years ago
    Angeleyes811's Avatar

    Jaw bone damage (osteonecrosis)

    Side Effects

    Of course I had anxiety and depression in the beginning, jaw pain where it hurt to eat, bone pain, that went through my entire body for a week. I was admitted to the hospital several times because my temperature went up to 102, just for a couple times and so many tests done to check and see if the chemotherapy was damaging other parts of my body. When I was admitted to the hospital, that was the only time I felt really safe. Your mind is always working and if no one understands what is going on with you, you fear you are going to die. You have to make up your mind to fight and believe me, it is a fight but don't ever give up. Don't let the word Cancer make you think it is the end. It became a beginning for me because I learned to appreciate life so much more and the beauty around us. I took up photography and everyday I would see something beautiful to capture which made the treatments easier.

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  3. 3
    over 4 years ago
    Angeleyes811's Avatar

    To live everyday and see all the beauty around me.

    Decision Point

    Once you make up your mind, you are not going to die,it becomes easier. After my fourth chemo I walked home from the hospital, a two mile walk and I went out everyday, even if it was just 2 blocks and walk around stores and take in the fresh air. I learned that you cannot let the word Cancer bring you down to it's level. You have to give yourself to God and you have to believe you are strong and that you are a survivor.

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  4. 4
    over 4 years ago
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    I wnt through breast cancer 10 years after lymphoma cancer.

    Other Care

    I had been cancer free for 10 years and one night laying in bed, I felt a very large hard knot in my right breast. I went to my doctor immediately and she sent me for a CT scan. I knew it was Cancer. They told me to wait that the doctor wanted to see me. When he walked in the room, I said to him "I have cancer, don't I? He said yes but I knew. This time I wasn't scared. I knew I could beat it. After all I am a survivor. They did a biopsy to make sure. I really wanted the doctor to do a mastectomy so I wouldn't have to worry but he said he was going to do a lumpectomy which meant I would have to have surgery, chemotherapy and radiation. I have small breasts so the mastectomy would not have bothered me and I wouldn't have needed radiation which really scarred me so now I only have a 1/4 of a breast but I have pain quite a bit from the radiation scarring me so bad. 3 months of chemo and 6-1/2 week of radiation 5 days a week.

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