Martha's Journey with Skin Cancer - Melanoma

Patient: Skin Cancer - Melanoma

Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: about 8 years ago, Female, Age: 37, Stage IV, BRAF mutation positive: Yes, c-kit positive: Don't Know

  1. 1
    • Martha
    • Experience with Skin Cancer - Melanoma
    almost 6 years ago
    Martha's Avatar

    Diagnosed

    Oh No

    September 2009 Diagnosis of Malignant Melanoma

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  2. 2
    • Martha
    • Experience with Skin Cancer - Melanoma
    almost 6 years ago
    Martha's Avatar

    Wide excision surgery

    Procedure or Surgery

    Large scar on lower spine. LONG recovery!

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  3. 3
    • Martha
    • Experience with Skin Cancer - Melanoma
    almost 6 years ago
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    Sentinel lymph node biopsy

    Procedure or Surgery

    October 2009 Removed 2 lymph nodes from each side of groin. One node was positive on right side.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  4. 4
    • Martha
    • Experience with Skin Cancer - Melanoma
    almost 6 years ago
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    Full lymph node dissection

    Procedure or Surgery

    October 2009 Lymph nodes in left groin removed. Drains suck! Nodes clear... give them back, please! :)

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  5. 5
    • Martha
    • Experience with Skin Cancer - Melanoma
    almost 6 years ago
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    Immunotherapy

    Drug or Chemo Therapy

    December 2009- December 2010 Interferon Therapy. One month of high dose infusions daily at cancer center. 11 months of self injections 3x each week.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    1 Comment
  6. 6
    • Martha
    • Experience with Skin Cancer - Melanoma
    almost 6 years ago
    Martha's Avatar

    Cancer is back/Recurred

    Oh No

    January 2011 Follow CT scan finds tumor in lower back.

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  7. 7
    • Martha
    • Experience with Skin Cancer - Melanoma
    almost 6 years ago
    Martha's Avatar

    Wide excision surgery

    Procedure or Surgery

    January 2011 Tumor removed, yep it's Melanoma again. Local recurrence, still stage 3.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  8. 8
    • Martha
    • Experience with Skin Cancer - Melanoma
    almost 6 years ago
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    Clinical Trial

    March 2011 Begin GSK Derma vaccine trial.

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  9. 9
    • Martha
    • Experience with Skin Cancer - Melanoma
    almost 6 years ago
    Martha's Avatar

    Cancer is back/Recurred

    Oh No

    July 2011 Lumps on scar felt

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  10. 10
    • Martha
    • Experience with Skin Cancer - Melanoma
    almost 6 years ago
    Martha's Avatar

    Wide excision surgery

    Procedure or Surgery

    July 2011 Melanoma tumors removed

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  11. 11
    • Martha
    • Experience with Skin Cancer - Melanoma
    almost 6 years ago
    Martha's Avatar

    Cancer is back/Recurred

    Oh No

    September 2011 More lumps found around scar during dermatologist check.

    0 Comments
  12. 12
    • Martha
    • Experience with Skin Cancer - Melanoma
    almost 6 years ago
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    Simple removal surgery

    Procedure or Surgery

    September 2011 Tumors removed outpatient... rough.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  13. 13
    • Martha
    • Experience with Skin Cancer - Melanoma
    almost 6 years ago
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    Decision Point

    End trial. Time for local radiation.

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  14. 14
    • Martha
    • Experience with Skin Cancer - Melanoma
    almost 6 years ago
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    External radiation

    Radiation

    October 2011 Local radiation to lower back. 6 weeks, 5x each week, 20 minutes each day.

    Painless Experience: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  15. 15
    • Martha
    • Experience with Skin Cancer - Melanoma
    over 3 years ago
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    Cancer has spread/Metastasized

    Oh No

    December 2011 While finishing radiation to back, find lump in front groin.

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  16. 16
    • Martha
    • Experience with Skin Cancer - Melanoma
    over 3 years ago
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    Now Stage 4

    Decision Point

    Time to try stage 4 treatments

    0 Comments
  17. 17
    • Martha
    • Experience with Skin Cancer - Melanoma
    over 3 years ago
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    Immunotherapy

    Drug or Chemo Therapy

    High Dose IL-2

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  18. 18
    • Martha
    • Experience with Skin Cancer - Melanoma
    over 3 years ago
    Martha's Avatar

    Cancer has spread/Metastasized

    Oh No

    Lung Mets, Stop IL-2

    0 Comments
  19. 19
    • Martha
    • Experience with Skin Cancer - Melanoma
    over 3 years ago
    Martha's Avatar

    Chemotherapy and immunotherapy combined (biochemotherapy)

    Drug or Chemo Therapy

    DTIC and Yervoy Combined

    Easy to Do: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  20. 20
    • Martha
    • Experience with Skin Cancer - Melanoma
    over 3 years ago
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    Cancer is shrinking

    Celebration

    Some tumor shrinkage

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  21. 21
    • Martha
    • Experience with Skin Cancer - Melanoma
    over 3 years ago
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    Cancer has spread/Metastasized

    Oh No

    Tumors in lungs and lymph nodes continue to grow

    0 Comments
  22. 22
    • Martha
    • Experience with Skin Cancer - Melanoma
    over 3 years ago
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    Targeted therapy

    Drug or Chemo Therapy

    Zelboraf

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  23. 23
    • Martha
    • Experience with Skin Cancer - Melanoma
    over 3 years ago
    Martha's Avatar

    Cancer has spread/Metastasized

    Oh No

    Zelboraf quits working after 6 months

    0 Comments
  24. 24
    • Martha
    • Experience with Skin Cancer - Melanoma
    over 3 years ago
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    Cancer has spread/Metastasized

    Oh No

    Find two brain tumors

    0 Comments
  25. 25
    • Martha
    • Experience with Skin Cancer - Melanoma
    over 3 years ago
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    Steriotactic Radiosurgery

    Radiation

    SRS to treat brain mets

    Painless Experience: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  26. 26
    • Martha
    • Experience with Skin Cancer - Melanoma
    over 3 years ago
    Martha's Avatar

    Cancer is shrinking

    Celebration

    Brain mets respond well to SRS

    0 Comments
  27. 27
    • Martha
    • Experience with Skin Cancer - Melanoma
    over 3 years ago
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    Chemotherapy and immunotherapy combined (biochemotherapy)

    Drug or Chemo Therapy

    Avastin and Temedor while recovering from SRS, hoping to enter Anti-pd1 trial

    Easy to Do: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
    0 Comments
  28. 28
    • Martha
    • Experience with Skin Cancer - Melanoma
    over 3 years ago
    Martha's Avatar

    Merck 3474 Anti-pd1

    Clinical Trial

    This person has yet to add any details about this experience.

    0 Comments
  29. 29
    • Martha
    • Experience with Skin Cancer - Melanoma
    over 3 years ago
    Martha's Avatar

    Cancer has spread/Metastasized

    Oh No

    Don't seem to be responding to trial

    0 Comments
  30. 30
    • Martha
    • Experience with Skin Cancer - Melanoma
    over 3 years ago
    Martha's Avatar

    Cancer is shrinking

    Celebration

    Anti-pd1 kicks in and tumors stabalize and begin shrinking!

    0 Comments
  31. 31
    • Martha
    • Experience with Skin Cancer - Melanoma
    over 3 years ago
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    Auto-immune meningitis

    Side Effects

    See spots due to swelling, focal seizures, loss of vision in right eye upper quadrant, brain fog and major headaches. Steroids to treat

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