HeidiJo's Journey with Non-Hodgkin Lymphoma (NHL)

Survivor: Non-Hodgkin Lymphoma (NHL)

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 8 years ago, Female, Age: 48, Stage II

  1. 1
    • HeidiJo
    • Experience with Non-Hodgkin Lymphoma (...
    about 5 years ago
    HeidiJo's Avatar

    Biopsy

    Procedure or Surgery

    I had a lump on the side of my neck that the Drs. said definitly was NOT cancer, but has to be removed, upon waking up, I was told I had Lymphoma. I reacted negativly to the anesthesia, and was vomiting for 8 hours

    Went as Expected: Strongly Disagree
    Minimal Recovery: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  2. 2
    • HeidiJo
    • Experience with Non-Hodgkin Lymphoma (...
    about 5 years ago
    HeidiJo's Avatar

    Implant chemotherapy port

    Procedure or Surgery

    This surgery went much better, they adjusted the meds so i was not sick when I woke up.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Agree
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  3. 3
    • HeidiJo
    • Experience with Non-Hodgkin Lymphoma (...
    about 5 years ago
    HeidiJo's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    The chemo made me sick, and gave me migraines, but my doctors had told me not to suffer, so I was given yet more meds to remedy that

    Easy to Do: Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  4. 4
    • HeidiJo
    • Experience with Non-Hodgkin Lymphoma (...
    about 5 years ago
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    I was told the chemo was not working

    Decision Point

    They felt I needed a stem cell transplant, we has to choose which facility to use, a daunting task when you dont have any experience with cancer centers! We ended up choosing Dana Farber ( a fine choice). I say we because my husband was there with me every step of the way. We began the process, and discovered the chemo was working, but I also have Sarcoids and it shows up the same as Lymphoma on the scans. It was a LONG process to figyure out how to separate the two.

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  5. 5
    • HeidiJo
    • Experience with Non-Hodgkin Lymphoma (...
    about 5 years ago
    HeidiJo's Avatar

    Surgery

    Procedure or Surgery

    I had to go to a thorassiac surgoen to have a mediascopsy(?) to biopsy the spots that showed up on the scans. It turned to be Sarcoids. The recovery was rough.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Neutral/NA
    Minimal Impact to Daily Life: Disagree
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  6. 6
    • HeidiJo
    • Experience with Non-Hodgkin Lymphoma (...
    about 5 years ago
    HeidiJo's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    We continued with the chemo treatments

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  7. 7
    • HeidiJo
    • Experience with Non-Hodgkin Lymphoma (...
    about 5 years ago
    HeidiJo's Avatar

    Finished treatment

    Celebration

    We finished the treatments, but I am in remission, and every Sarcoid that shows up on my scans has to be rescanned or biopsied.

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