HeidiJo's Journey with Non-Hodgkin Lymphoma (NHL)

I had a lump on the side of my neck that the Drs. said definitly was NOT cancer, but has to be removed, upon waking up, I was told I had Lymphoma. I reacted negativly to the anesthesia, and was vomiting for 8 hours

This surgery went much better, they adjusted the meds so i was not sick when I woke up.

The chemo made me sick, and gave me migraines, but my doctors had told me not to suffer, so I was given yet more meds to remedy that

They felt I needed a stem cell transplant, we has to choose which facility to use, a daunting task when you dont have any experience with cancer centers! We ended up choosing Dana Farber ( a fine choice). I say we because my husband was there with me every step of the way. We began the process, and discovered the chemo was working, but I also have Sarcoids and it shows up the same as Lymphoma on the scans. It was a LONG process to figyure out how to separate the two.

I had to go to a thorassiac surgoen to have a mediascopsy(?) to biopsy the spots that showed up on the scans. It turned to be Sarcoids. The recovery was rough.

We continued with the chemo treatments

We finished the treatments, but I am in remission, and every Sarcoid that shows up on my scans has to be rescanned or biopsied.