Patti2008's Journey with B-Cell, Acute Lymphocytic Leukemia

Survivor: Leukemia > Acute Lymphocytic Leukemia (ALL) > B-Cell

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 9 years ago, Female, Age: 53

  1. 1
    • Patti2008
    • Experience with B-Cell, Acute Lympho...
    about 5 years ago
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    Diagnosed

    Oh No

    When I was diagnosed with Leukemia I could hardly believe what I was hearing. There was not lump, bump, or strange looking mole, just a feeling of exhaustion and uneasiness. I knew something was wrong, but never anticipated anything so life changing

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  2. 2
    • Patti2008
    • Experience with B-Cell, Acute Lympho...
    about 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    I had to complete 8 rounds of chemotherapy, each with a 5-6 day stay in the hospital. During the first round I was admitted for a month to monitor how the drugs affected my blood counts.

    Easy to Do: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    • Patti2008
    • Experience with B-Cell, Acute Lympho...
    about 5 years ago
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    Anemia (low red blood cell counts)

    Side Effects

    My blood count would drop drastically after chemo. I received nearly 100 blood transfusions in all.

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  4. 4
    • Patti2008
    • Experience with B-Cell, Acute Lympho...
    about 5 years ago
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    Bleeding

    Side Effects

    I was hospitalized twice with a bloody nose after my platelets dropped to 8. I also experienced vaginal bleeding.

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  5. 5
    • Patti2008
    • Experience with B-Cell, Acute Lympho...
    about 5 years ago
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    Chemo brain

    Side Effects

    My brain was fuzzy and I couldn't comprehend information as quickly as usually. I was also forgetful.

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  6. 6
    • Patti2008
    • Experience with B-Cell, Acute Lympho...
    about 5 years ago
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    Diarrhea

    Side Effects

    I had Diarrhea on and off. The worst was when I had C-Diff. I was in a diaper for 3 weeks.

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  7. 7
    • Patti2008
    • Experience with B-Cell, Acute Lympho...
    about 5 years ago
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    Fatigue (tiredness)

    Side Effects

    I was exhausted all the time. I never fought sleep. When I needed to, I slept.

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  8. 8
    • Patti2008
    • Experience with B-Cell, Acute Lympho...
    about 5 years ago
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    Low platelet counts (thrombocytopenia)

    Side Effects

    My platelets would fall to about 8 or so after chemo. I was admitted twice for uncontrollable nose bleeds.

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  9. 9
    • Patti2008
    • Experience with B-Cell, Acute Lympho...
    about 5 years ago
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    Hair loss (alopecia)

    Side Effects

    I lost all my hair everywhere. Since my chemo was in the winter it was very cold. My eyes and nose would water because of I had no eyelashes,etc.

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  10. 10
    • Patti2008
    • Experience with B-Cell, Acute Lympho...
    about 5 years ago
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    Mouth sores

    Side Effects

    I was diligent about rinsing my mouth several times a day. I only experienced mouth soures once after chemo.

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  11. 11
    • Patti2008
    • Experience with B-Cell, Acute Lympho...
    about 5 years ago
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    Low white blood cell counts (neutropenia)

    Side Effects

    I would receive Neupogen shots for about a week during my neutropenia. The shots were painful and left large bruises. I was very careful about not going out in public during this time....usually 3-4 days.

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  12. 12
    • Patti2008
    • Experience with B-Cell, Acute Lympho...
    about 5 years ago
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    Nerve damage (peripheral neuropathy)

    Side Effects

    I experienced neuropathy during my treatment, and still suffer from it 4 years later

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  13. 13
    • Patti2008
    • Experience with B-Cell, Acute Lympho...
    about 5 years ago
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    Nausea/Vomiting

    Side Effects

    I did experience some vomiting, but the meds kept it at bay.

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  14. 14
    • Patti2008
    • Experience with B-Cell, Acute Lympho...
    about 5 years ago
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    Swelling (edema)

    Side Effects

    I experienced alot of edema after each chemo treatment. It was a constant battle between retaining fluid and taking water pills to get rid of it.

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  15. 15
    • Patti2008
    • Experience with B-Cell, Acute Lympho...
    about 5 years ago
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    Remission

    Celebration

    After 171 days in the hospital and 15 months of treatment I am cancer free and have been in remission for almost 4 years

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