cariej11's Journey with Papillary Carcinoma, Thyroid Cancer

Survivor: Thyroid Cancer > Papillary Carcinoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 6 years ago, Female, Age: 28

  1. 1
    • cariej11
    • Experience with Papillary Carcinoma, ...
    over 5 years ago
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    Diagnosed

    Oh No

    Being a nursing student, I'm always self-diagnosing. This time I was right about something not being right with the right side of my thyroid. Another nurse I work with also noticed it..so this smart girl went to get it checked out.

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  2. 2
    • cariej11
    • Experience with Papillary Carcinoma, ...
    over 5 years ago
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    Decision Point

    My ENT ran a complete thyroid panel, a fine needle aspiration and did an ultrasound..all coming back negative for anything, except for confirming 3 nodules on my thyroid...the largest 3 cm on my right lobe. She let me decide, since I'm younger, if I wanted to watch, repeat or just do surgery. I decided a right thyroid lobectomy.

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  3. 3
    • cariej11
    • Experience with Papillary Carcinoma, ...
    over 5 years ago
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    Surgery

    Procedure or Surgery

    My ENT, who did my surgery as well, said the nodule did not look malignant. 1 week later, I got the call that it was grade 2 cancer and we needed to take the other lobe out, with just 1 week before the start of my senior year in nursing school. Being completely hypothyroid for over 2 months, almost 3 months, has definitely taken a toll on me, mentally and physically. I am much more tired than usual, my focus is not 100%, the iodine-free diet has NOT been pleasant and being isolated have all been major factors after this surgery/RAI. This has definitely not been an easy road.

    Went as Expected: Neutral/NA
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  4. 4
    • cariej11
    • Experience with Papillary Carcinoma, ...
    over 5 years ago
    cariej11's Avatar

    Internal radiation

    Radiation

    I was nauseated the first 4 days of treatment, metallic taste in my mouth the last half of the week, tenderness throughout my jaw and cheeks in my salivary glands the first 2 days and was not a fan of the iodine-free diet for a month. I am still in my radioactive phase..but only until tomorrow morning! I could not be more excited! :)

    Painless Experience: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Neutral/NA
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