DancingFerret's Journey with Invasive Lobular Carcinoma

Survivor: Breast Cancer > Invasive Lobular Carcinoma

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 10 years ago, Female, Age: 47, Stage IIA, HER2 Positive: No, ER Positive: Yes, PR Positive: Yes

  1. 1
    over 4 years ago
    DancingFerret's Avatar

    Lumpectomy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  2. 2
    over 4 years ago
    DancingFerret's Avatar

    Diagnosed

    Oh No

    Before my surgery, the radiologists told me they were 99.9% sure my tumours were benign because there were no microcalcifications showing. So needless to say, after I had them removed in a lumpectomy, I was shocked to find out that not only were they malignant, but they were invasive.

    0 Comments
  3. 3
    over 4 years ago
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    Mastectomy

    Procedure or Surgery

    Having a radical mastectomy, with sentinel node biopsy, was an incredibly painful surgery and I still cannot believe that insurance companies only allow for an overnight stay for such an extreme, life-shattering surgery. Apparently amputating part of your body shouldn't keep you in hospital for more than a day...

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  4. 4
    over 4 years ago
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    Implant chemotherapy port

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  5. 5
    over 4 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    I underwent several cycles of dose-dense chemotherapy, with Adrimyacin and Cytoxan.

    Easy to Do: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  6. 6
    over 4 years ago
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    Hair loss (alopecia)

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  7. 7
    over 4 years ago
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    Anemia (low red blood cell counts)

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  8. 8
    over 4 years ago
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    Mouth sores

    Side Effects

    After my second round of chemo, I developed ulcerations in my mouth, throat and esophagus that remained constant throughout my entire chemotherapy treatment. Despite support medications and narcotics, I was barely able to tolerate eating soft foods like mashed potatoes or eggs.

    0 Comments
  9. 9
    over 4 years ago
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    Nausea/Vomiting

    Side Effects

    I had to take several nausea medications concurrently, but at least they kept the nausea relatively manageable and I experienced hardly any actual vomiting.

    0 Comments
  10. 10
    over 4 years ago
    DancingFerret's Avatar

    Pain

    Side Effects

    To boost my white blood cell counts, the oncologist gave me a shot of Neulasta after each chemo treatment. Within 24 hours of each shot, I experienced excruciating bone pain in every large bone in my body - thigh, hips, pelvis, shoulder blades, arms, etc. - and the pain lasted at least 4 days each time.

    0 Comments
  11. 11
    over 4 years ago
    DancingFerret's Avatar

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  12. 12
    over 4 years ago
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    Remission

    Celebration

    I finished treatment and was told my cancer was now in remission.

    0 Comments
  13. 13
    over 4 years ago
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    Cancer is back/Recurred

    Oh No

    Nearly a year ago, after unexplained weight loss and recurring abdominal pain, I finally ended up in the ER and after a number of tests, it was discovered that I had a very large tumour in my uterus.

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  14. 14
    over 4 years ago
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    Surgery

    Procedure or Surgery

    Because of my history of invasive cancer and the rapid growth the tumour had exhibited, my gynecological oncologist strongly recommended I have a complete hysterectomy.

    Went as Expected: Agree
    Minimal Recovery: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  15. 15
    over 4 years ago
    DancingFerret's Avatar

    good news

    Celebration

    The tumour had not spread beyond my reproductive organs, so no further treatment beyond the surgery was necessary.

    0 Comments
  16. 16
    over 2 years ago
    DancingFerret's Avatar

    Cancer has spread/Metastasized

    Oh No

    I was hospitalized 2 weeks ago for vomiting due to a virus. The admitting doctor discovered that I was anemic and hypercalcemic. Coupled with the severe bone pain I've been having, especially in my right hip, he recommended that I see an oncologist ASAP. Saw the new oncologist and he's concerned that I may have bone metastasis, so he's ordered a barrage of tests. The oncology nurse in his office took blood for tumor marker tests, etc. Starting tomorrow, I go to the hospital in the morning to get a bone scan. Wednesday, I return to the hospital in the morning to have a series of CT scans. Thursday, I return to the hospital to have a mammogram. Then I get to play the waiting game while I wait for the results to see if I'm now Stage IV and it's terrifying me.

    5 Comments