navalex's Journey with Ductal carcinoma in situ (DCIS)

Survivor: Breast Cancer > Ductal carcinoma in situ (DCIS)

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 10 years ago, Female, Age: 65, Stage I, HER2 Positive: Yes, ER Positive: Yes, PR Positive: Don't Know

  1. 1
    • navalex
    • Experience with Ductal carcinoma in si...
    over 4 years ago
    navalex's Avatar

    Breast MRI instead of Mammogram

    Procedure or Surgery

    Due to soreness in breast that I had for at least 3 years and because mammogram technicians always teling me that my thick breast tissue made it hard to see anything but shadows in a mammogram, I demanded a breast MRI instead of the annual mammogram from the gynocologist.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  2. 2
    • navalex
    • Experience with Ductal carcinoma in si...
    over 4 years ago
    navalex's Avatar

    Diagnosed

    Oh No

    Despite the OBGYN sharing his wife's experience with DCIS, we walked out of the office, got into the car and sat there in disbelief and wondered 'what do we do next?' The OBGYN referred us immediately to the best surgical oncologist in the state and set up an appointment for us, taking away the 'What's next?' concern and anxiety.

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  3. 3
    • navalex
    • Experience with Ductal carcinoma in si...
    over 4 years ago
    navalex's Avatar

    MRI Tissue Needle Biopsy

    Procedure or Surgery

    Surgical Oncologist sent me for an MRI tissue biopsy and markers for wire localization to help diagnose the cancer and to determine how much tissue should be removed during the lumpectomy.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  4. 4
    • navalex
    • Experience with Ductal carcinoma in si...
    over 4 years ago
    navalex's Avatar

    Other

    Decision Point

    Decided to educate myself and become my own best advocate armed with information. Purchased Dr. Susan Love's Breast Book, gathered information from the American Cancer Society, Breast Cancer.org and my doctor's, as well as gained second opinions. Spent hours reading, searching the credible breast cancer websites and talking to other women with the same type of breast cancer. In doing this, when it came time to make decisions about my treatment and recovery, I felt very comfortable about the decisions I made for myself and currently have no regrets.

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  5. 5
    • navalex
    • Experience with Ductal carcinoma in si...
    over 4 years ago
    navalex's Avatar

    Lumpectomy

    Procedure or Surgery

    Lumpectomy 3 weeks after diagnosis. All the information we needed about surgery and post surgery treatment was given to us prior to the surgery so that I could make an informed decision and knew what would happen next once released from the hospital.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments
  6. 6
    • navalex
    • Experience with Ductal carcinoma in si...
    over 4 years ago
    navalex's Avatar

    Post Surgery Follow-up

    Other Care

    Post surgery follow-up involved the Surgical Oncologist first and then the Medical Oncologist. Radiology was still being considered.

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  7. 7
    • navalex
    • Experience with Ductal carcinoma in si...
    over 4 years ago
    navalex's Avatar

    Put on Arimidex

    Drug or Chemo Therapy

    Had appointments with the Medical Oncologist and Radiologist regarding the type of treatment - keep the breast and have radiation & chemotherapy - have a mastectomy and have chemotherapy only. If necessary to have radiation, then will need to consult with radiologist. Was put on Arimidex until tissue sample results from Lumpectomy came back and until I made a decision on what type of treatment I would have.

    Easy to Do: Strongly Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
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  8. 8
    • navalex
    • Experience with Ductal carcinoma in si...
    over 4 years ago
    navalex's Avatar

    Other

    Oh No

    Tissue samples from lumpectomy indicated that the margins were no good and displaying cancerous tissue. Went for a second opinion at another cancer center before making a decision on whether or not to keep my breast and go through therapy or have a mastectomy.

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  9. 9
    • navalex
    • Experience with Ductal carcinoma in si...
    over 4 years ago
    navalex's Avatar

    Agressiveness of the breast cancer

    Decision Point

    Despite the cancer being Stage One, when we were told that the type of breast cancer that I was experiencing was very aggressive and had moved near the chest wall, but the most treatable, I decided to have a mastectomy after seeking a second opinion. Taken off the Arimidex until after mastectomy surgery.

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  10. 10
    • navalex
    • Experience with Ductal carcinoma in si...
    over 4 years ago
    navalex's Avatar

    Probability of cancer returning in the same breast

    Decision Point

    Drawing on the experience of others famous and not famous, and due to the agressiveness of the HER2 neu + I decided to have a mastectomy.

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  11. 11
    • navalex
    • Experience with Ductal carcinoma in si...
    over 4 years ago
    navalex's Avatar

    Therapy - Type of Therapy & form of Drug Administration after Mastectomy

    Decision Point

    Consulted with Medical Oncologist on final treatment decision before having mastectomy surgery. Decision was made to have TCH (Taxol, Carboplatin, and Herceptin, and no radiation as there would be nothing to radiate. Suggestion was made to have a medport inserted in chest after recouperation from surgery by the Surgical Oncologist. Medport would help avoid being poked in the arm and scar tissue building up in the veins.

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  12. 12
    • navalex
    • Experience with Ductal carcinoma in si...
    over 4 years ago
    navalex's Avatar

    Plastic Surgeon Consultation

    Other Care

    Since the decision was made to have the breast reconstruction done at the same time of the mastectomy an appointment was made with the plastic surgeon. We discussed the different options for reconstruction. Due to my concerns about returning to work within a reasonable time, I chose to have an implant as this was a less complicated procedure and had the least recovery time. Chose a saline implant instead of silicone, due to concerns over possible leakage.

    0 Comments
  13. 13
    • navalex
    • Experience with Ductal carcinoma in si...
    over 4 years ago
    navalex's Avatar

    Wire localization 2 hours before surgery

    Other Care

    Not a pleasant experience, but not painful.....the hospital technicians and doctors took very good care of me to make sure I wasn't feeling any pain; it was just a bit uncomfortable.

    0 Comments
  14. 14
    • navalex
    • Experience with Ductal carcinoma in si...
    over 4 years ago
    navalex's Avatar

    Sentinel lymph node biopsy

    Procedure or Surgery

    Conducted before 1 hour before surgery in the hospital. This is something you should have done, but you should ask about what is going to be done during the procedure and what should happen before you have this done.

    Went as Expected: Disagree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Neutral/NA
    0 Comments
  15. 15
    • navalex
    • Experience with Ductal carcinoma in si...
    over 4 years ago
    navalex's Avatar

    Mastectomy

    Procedure or Surgery

    Mastectomy - Breast reconstruction with implant done at same time of surgery. Only lost 5 lymph nodes - all non-cancerous.

    Went as Expected: Agree
    Minimal Recovery: Neutral/NA
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  16. 16
    • navalex
    • Experience with Ductal carcinoma in si...
    over 4 years ago
    navalex's Avatar

    Nerve damage (peripheral neuropathy)

    Side Effects

    Nerve damage was not unexpected and I think minimal. Lost some feeling in my hand and have good handwriting some days and other days can't get a pen comfortable in my hand. Also have a numb feeling that goes down my arm only if someone grabs my upper arm a gives it a little 'love' squeeze - somewhat of the same feeling when you've sat on your foot too long and it begins to 'wake up'. Tend to drop things more.

    0 Comments
  17. 17
    • navalex
    • Experience with Ductal carcinoma in si...
    over 4 years ago
    navalex's Avatar

    Hospitalization

    Other Care

    Hopitalization after lumpectomy and mastectomy. For some reason I don't remember my time in the hospital after the lumpectomy (chemo brain?), but remember my time after the mastectomy. Nurses and doctor's were wonderful, the food was unappetizing. Lots of restlessness when awake and annoyed by being attached to an IV and the pole, especially when i had to get up to do anything. Hospitalized for 3 days, then sent home with instructions and told they had arranged for a visiting nurse to come to my home every two days to check on my incisions and drainaige tube.

    0 Comments
  18. 18
    • navalex
    • Experience with Ductal carcinoma in si...
    over 4 years ago
    navalex's Avatar

    Home care

    Other Care

    Visiting Nurses Association - Nurse came out 3 time a week for the first two of the five weeks that I was home. Then came out once or twice a week as my recouperation moved forward. Drainage tube and incisions were checked and bandages changed. Having a visiting nurse come to the house helped us avoid making frequent trips into the doctor's office and allowed my husband to work worry free.

    0 Comments
  19. 19
    • navalex
    • Experience with Ductal carcinoma in si...
    over 4 years ago
    navalex's Avatar

    Drug or Chemo Therapy

    This person has yet to add any details about this experience.

    Easy to Do: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments