rolandfranklin's Journey with Carcinoid Tumor, Colorectal Cancer

Survivor: Colorectal (Colon) Cancer > Carcinoid Tumor

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: over 8 years ago, Male, Age: 52, KRAS mutation positive: Yes, BRAF mutation positive: Don't Know, Stage Recurrent

  1. 1
    about 5 years ago
    rolandfranklin's Avatar

    Diagnosed

    Oh No

    I was went to have a colonoscopy because I had IBS symptoms. A previous colonoscopy showed no polyps or any indication. This test showed a full grown tumor in my lower colon! Devistated!

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  2. 2
    about 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    I was placed on a very aggressive chemo regimen (5fu and leucovorin). I did get very severe side effects (mouth sores, skin burns from the sun). Not easy to deal with.

    Easy to Do: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
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  3. 3
    about 5 years ago
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    External radiation

    Radiation

    The radiation regimen was daily for 30 days. It was painless and minimal side effects until I came near the end of the treatment. Then I expericenced pain during bowel movements. I also had a mucus dischage that bothered me.

    Painless Experience: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  4. 4
    about 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    Afer I was released from the hospital from the surgery, I was then placed on a chemo regimen of 5fu and leucovorin. Treatment was every week for 6 months. I had one week off in between cycles. It was easy to get the chemo. I actually was able to work while getting the treatments. My job allowed me to work from home and I would take my laptop to the Dr.'s office and do my work while getting treatment. I would get very lathargic soon after the treatment. I would then get a saline hydryation and shots to boost my white cells after treatment.

    Easy to Do: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
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  5. 5
    about 5 years ago
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    Removal of rectal tumor

    Procedure or Surgery

    The surgery I had was a resection of my lower colon. The surgeon removed the cancerous section and resected the colon. They also created a temporary Ileostomy, so that the resected section could heal well. The recovery was extremly rough. I had nasogastric tube to pump the gastric fluid out of my stomach for weeks. Its was the wost experience ever! The ileostomy was hard to deal with mentally and physically. I did not accept my surgery at first. I could not even look at the surgery site. Very tough period in my life.

    Went as Expected: Agree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  6. 6
    about 5 years ago
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    Cancer is back/Recurred

    Oh No

    After the surgery and recieving chemo treatments, I was scheduled to have the temporary ileostomy reversal surgery. While undergoing the pre-surgery test, they found the cancer has recurred! I am devistated again! I can't belive it! Second worst day of my life!

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  7. 7
    about 5 years ago
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    Colostomy

    Procedure or Surgery

    The surgery was to remove my entire lower colon, rectum and all. I will have to have a permanent colostomy now. I am devistated by this news. I remember talking to my surgeon. He was up front with me and gave it all to God. I knew I would be ok. I know that I would survive this again. I just remember wanting to get this over with so I could go on to my normal life again. God is awesome!!!! The surgery did not go as planned. Because of the damage done from previous radiation treatments, the could not perform the laproscoptice surgery. I had to have open surgery. There was a lot of complications the surgeon had to overcome to perform my surgery. The recovery was the worst. I had developed a staff infection that last weeks, my bowels would not respond for days, I suffered a lot. I almost lost my will. It was tough. I remember my gilfriend telliing her mom that I might not make it. I looked horrible. My Mom came everyday to see me...I love her! I was alone and prayed to God to help me...He told me "You will be alright...I have you". I rested on this promise and came out the hospital weak but so strong in the mind. I can not be stopped!!! With God before me, who can be against me!!

    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Disagree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  8. 8
    about 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    After the second surgery, I was placed on a chemo regimen of oxaliplatin, 5fu and leucovorin. The side effects from the oxaliplatin where the worst!! It numbs my hands, feet and mouth when I touch anything cold. I have neuropathy in my feet and my hands. I still have the neuropathy and it sucks.

    Easy to Do: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
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  9. 9
    about 5 years ago
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    Change Oncologist

    Decision Point

    Because my cancer has recurred twice, my oncologist suggested going to Memorial Sloan-Kettering in NYC for an expert opinion. I trusted my oncologist, and agreed to see the experts at MSK. After taking tests and reviewing my case, the Dr.'s at MSK came up with a chemo treatment protocol that would help my situation. I choose to get the treatment at my original oncologist because of the distance to NYC. Ready to go again! LIVESTRONG!!!!!

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  10. 10
    about 5 years ago
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    Chemotherapy

    Drug or Chemo Therapy

    I am now taking erbitux and irinotecan. The erbitux has caused a severe rash all over my chest, back and face. Its like acne. I was given minocyline for the rash. It works but it is very severe and looks bad. I have a huge hernia now from both surgeries that causes my stomach to protrude way out in front. It looks like I am about 8 months pregnant. So now I have acne and a fat stomach...real nice! LOL! It is a struggle everyday for me. Mentally, physically. But GOD IS AWESOME!!! I am here alive and can do mostly everything I want to do.

    Easy to Do: Agree
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Disagree
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  11. 11
    about 5 years ago
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    Cancer is back/Recurred

    Oh No

    Afer completing the chemo treatment, I was given a CAT/PET scan that showed that the can has recurred...again! YOU GOT TO BE KIDDING ME!!! I am done. Just when I thought I could not take any more bad news, I get this news. Stunned...lost...at a lost for words. I dont know how, but I left the Dr.'s office in tears and by the time I got home, I was looking forward to beating this cancer again! I want to live and I know God is on my side. I remember His promise to me. I am a warrior and ready to fight again! LET' DO THIS!!!!

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