KatieL's Journey:

Patient: Multiple Myeloma

Patient Info: Living with cancer as a chronic illness (undergoing adjuvant therapy), Diagnosed: almost 9 years ago, Female, Age: 76

  1. 1
    • KatieL
    • Experience with Multiple Myeloma
    over 4 years ago
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    Bone strengthening drugs

    Drug or Chemo Therapy

    I have been taking a monthly infusion of a bone strengthening drug since my diagnosis 5 1/2 years ago. My bones have been stable for the entire time, Dexascan showing no changes even through various treatment regimes, auto transplant. I read that often the bisphonates are given less frequently by some doctors. Any comments on what you are doing, your doctor's reasoning, etc. Since myeloma frequently attacks bones, I feel very fortunate indeed that this medicine has kept my bones strong during my myeloma journey, but I just wonder about the frequency now in light of some newer research.

    Easy to Do: Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
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  2. 2
    • KatieL
    • Experience with Multiple Myeloma
    over 3 years ago
    KatieL's Avatar

    Nerve damage (peripheral neuropathy)

    Side Effects

    I still struggle with "fiddley" feet at night, especially after a dex day when I am kind of wired, anyway. I use neurontin, a spray called Crampz, and those help on ordinary nights. Any suggestions for the dex nights? I take it with my treatment drug twice a week for two weeks, then one week all all drugs.

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  3. 3
    • KatieL
    • Experience with Multiple Myeloma
    almost 3 years ago
    KatieL's Avatar

    Anniversary

    Celebration

    I have passed my sixth anniversary since my diagnosis of multiple myeloma. When I first heard of the disease, I was reading that the life expectancy at that time was 1-3 years. We've come a long way--thanks to the new drugs appearing for treatment.

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  4. 4
    • KatieL
    • Experience with Multiple Myeloma
    over 2 years ago
    KatieL's Avatar

    Milestones

    When I first ever heard of multiple myeloma, when I was just being watched with MGUS, I read that I would have on average1-3 years of life after diagnosis should I progress to disease. I was diagnosed in March of 2008, and I am happily still alive and feeling mostly good day after day after day. Bless the docs and researchers for their wonderful work in developing new and well- tolerated drugs and combinations to help us live longer and better. diagnosis

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