Shirl's Journey with Pancreatic Cancer

Lost Loved One: Pancreatic Cancer

Patient Info: Diagnosed: about 12 years ago, Male, Stage IV

  1. 1
    • Shirl
    • Experience with Pancreatic Cancer
    about 5 years ago
    Shirl's Avatar

    Oh No

    I was in total shock when the doctor told me stage 4 pancreatic cancer metastacized to the liver but I went to the chapel, gathered myself together and bravely went to my husband's bedside., he matter of factly said, Shirl, we have a problem.

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  2. 2
    • Shirl
    • Experience with Pancreatic Cancer
    about 5 years ago
    Shirl's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    He had chermo and no one offered a port so he was stuck but he handled it well. I went with him to each session, after which he got into his own car and went to work. When time wore on and the veins collapsed a port was suggested but the first surgery for it was unsuccessful. The second, in the carotid, worked.

    Easy to Do: Disagree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Strongly Agree
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  3. 3
    • Shirl
    • Experience with Pancreatic Cancer
    about 5 years ago
    Shirl's Avatar

    Fatigue (tiredness)

    Side Effects

    He felt fatigue after the first session, but after that he was fine. Until the end of the line when he wanted to continue and the oncologist (and my son, an MD) concurred there would be no poiint.

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  4. 4
    • Shirl
    • Experience with Pancreatic Cancer
    about 5 years ago
    Shirl's Avatar

    Birthday

    Celebration

    We celebrated his last birthday at a restaurant with a mob of family and friends; he was amazing; I kept smiling though my heart was breaking!

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  5. 5
    • Shirl
    • Experience with Pancreatic Cancer
    about 5 years ago
    Shirl's Avatar

    the oncologist said no more chemo

    Decision Point

    That was a sad day: the first time I saw his tears. We sat on the bed holding onto each other and realizing that we had very iittle time left and this was for real.

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  6. 6
    • Shirl
    • Experience with Pancreatic Cancer
    about 5 years ago
    Shirl's Avatar

    Hospice

    Other Care

    Hospice was useless. The last meeting with the oncologist was Friday; they came Saturday; the woman said you can reach me 24/7. She ordered a wheelchair (even though we had one), oxygen and a lift lounge chair. When they arrived, the oxygen was not working, the chair smelled disgusting and the wheelchair was too small. So I called the women, whom noone seemed to know anywhere. A nurse came on Monday reeking of cigarettes. He began bleeding on Friday so I called for her; she was not reachable, in a meeting. When she finally came hours later, she was still reeking. She did nothing, said an aide would come in the morning. The aide knew nothing, said the bleeding was just normal juices. He died 10 hours later. On Monday the nurse came back to see him. But I felt privileged to have taken care of him myself,. Between my son, the doc, andm y daughter, the nurse, I had all the info I needed.

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