Clarence's Journey with Leukemia

Survivor: Leukemia

Patient Info: Finished active treatment more than 5 years ago, Diagnosed: over 50 years ago, Male, Age: 53

  1. 1
    over 4 years ago
    Clarence's Avatar

    Diagnosed

    Oh No

    Was told by my mom that on a routine checkup that the doctors said i had Leukemia.Back in 1966 the survival rate was less than 5% for Childhood Leukemia. The doctor's wanted too run test but there outlook wasn't a positive one, so my family found another doctor who was willing to treat me and care for me in a way that he cared more about me than just gathering information.

    0 Comments
  2. 2
    over 4 years ago
    Clarence's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I started chemo and almost immediately started losing weight and my hair. By age 5 I had very little hair and my weight was around 40-50 lbs. As a small child there where many things i couldn't due because i would get ill very quickly.

    Easy to Do: Neutral/NA
    Minimal Side Effects: Strongly Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  3. 3
    over 4 years ago
    Clarence's Avatar

    Blood Transfusion

    Procedure or Surgery

    At the age of 8 years old the doctors told my family that a blood transfusion was needed and they had to decide on who would get the transfusion. There was another little boy about my age with a different type of cancer that also had the same blood type as me and also required a transfusion, but there was only enough blood coming from New York to treat one of us. Hours later we where told that i would get the transfusion and the other child wouldn't. Sadly the other child passed away several days later and it was hard to imagine that that could have been me. After the treatment several months went by and for and unknown reason i lost use of my legs.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Agree
    Minimal Impact to Daily Life: Agree
    0 Comments
  4. 4
    over 4 years ago
    Clarence's Avatar

    Internal radiation

    Radiation

    While i was receiving Radiation i was also getting Chemo treatments. My Doctor would rotate treatments every 6 weeks with small breaks in between treatments, this went on for 13 years.

    Painless Experience: Disagree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Strongly Disagree
    0 Comments
  5. 5
    over 4 years ago
    Clarence's Avatar

    There where 7 children all with different types of Cancer

    Loss

    There where 7 children all with different types of Cancer being treated at the hospital, we all where on the same floor and became very close. Sadly one by one they passed away and when i was 15 a young girl who was 2 years younger than me was the last to pass away and we both went to the same school at the time. I got in many fights that year protecting her and myself as the other children would pick on her and me because they wanted to see a seizure. I was the last of our group and i felt all alone.

    0 Comments
  6. 6
    over 4 years ago
    Clarence's Avatar

    Remission

    Celebration

    At 15 i went into remission and also had my first girlfriend, we stayed together from junior high all the way through high school before going in seperate directions that wasn't totally within our control.I have had a few bumps in the road since then , but have remained in remission for the last 33 years and have been living with Cancer for 46 years. I hope my experience can give everyonme hope that even when things don't look good if you keep fighting and have faith you always have a chance to beat any type of Cancer.

    1 Comment
  7. 7
    almost 4 years ago
    Clarence's Avatar

    Anniversary

    Celebration

    I entered my 34th year in remission from A.L.L. Leukemia. I happy that i have been blessed with 2 healthy sons that are now 18 and 11 years old. Was told children wouldn't be likely as i had both chemo and radiation for 13 years, starting at the age of 2. I'm now 49 and hope i have many more years to come.

    0 Comments