RobinH's Journey with Ovarian and Fallopian Tube Cancer

Survivor: Ovarian and Fallopian Tube Cancer

Patient Info: Finished active treatment less than 5 years ago, Diagnosed: almost 6 years ago, Female, Age: 49, Stage IIIC

  1. 1
    • RobinH
    • Experience with Ovarian and Fallopian T...
    over 4 years ago
    RobinH's Avatar

    Debulking surgery

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Agree
    Minimal Recovery: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Agree
    0 Comments
  2. 2
    • RobinH
    • Experience with Ovarian and Fallopian T...
    over 4 years ago
    RobinH's Avatar

    Laparoscopic hysterectomy

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Strongly Disagree
    Minimal Recovery: Strongly Agree
    Minimal Side Effects: Strongly Agree
    Minimal Impact to Daily Life: Strongly Agree
    0 Comments
  3. 3
    • RobinH
    • Experience with Ovarian and Fallopian T...
    over 4 years ago
    RobinH's Avatar

    Chemotherapy

    Drug or Chemo Therapy

    I received 6 rounds of chemo; 3 treatments in each round. Twice in each round I had 2+ litres of chemo directly administered to my abdominal area which caused extreme bloating. I found that wearing SPANX helped to alleviate some of the swelling and prevented it from traveling down into my groin/legs.

    Easy to Do: Agree
    Minimal Side Effects: Disagree
    Minimal Impact to Daily Life: Disagree
    0 Comments
  4. 4
    • RobinH
    • Experience with Ovarian and Fallopian T...
    over 4 years ago
    RobinH's Avatar

    Constipation

    Side Effects

    For the first week following a treatment I had SEVERE constipation. I recommend not waiting until it happens and trying to treat the symptoms; but stay ahead of it and try to prevent it. Miralax was my best friend during chemo treatments. I am now 11 months out from chemo treatments and still have trouble with constipation; although not nearly as severe.

    0 Comments
  5. 5
    • RobinH
    • Experience with Ovarian and Fallopian T...
    over 4 years ago
    RobinH's Avatar

    Nerve damage (peripheral neuropathy)

    Side Effects

    I did not experience the neuropathy until shortly after the chemo treatments ended. My legs/feet tingle and hurt like they are asleep. Recently I started experimenting with acupuncture and it is helping; I do not have much feeling but the pain is less.

    0 Comments
  6. 6
    • RobinH
    • Experience with Ovarian and Fallopian T...
    over 4 years ago
    RobinH's Avatar

    Shortness of breath

    Side Effects

    This person has yet to add any details about this experience.

    0 Comments
  7. 7
    • RobinH
    • Experience with Ovarian and Fallopian T...
    over 4 years ago
    RobinH's Avatar

    Other

    Decision Point

    This person has yet to add any details about this experience.

    0 Comments
  8. 8
    • RobinH
    • Experience with Ovarian and Fallopian T...
    over 4 years ago
    RobinH's Avatar

    Remission

    Celebration

    This person has yet to add any details about this experience.

    0 Comments
  9. 9
    • RobinH
    • Experience with Ovarian and Fallopian T...
    over 4 years ago
    RobinH's Avatar

    Celebration

    This person has yet to add any details about this experience.

    0 Comments
  10. 10
    • RobinH
    • Experience with Ovarian and Fallopian T...
    over 4 years ago
    RobinH's Avatar

    Diagnosed

    Oh No

    After I finished the treatments for my Ovarian Cancer and was successfully in remission; I found out that I have the BRCA1 mutation and had an 87% chance of developing breast cancer so I choose to have a bi-lateral mastectomy

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  11. 11
    • RobinH
    • Experience with Ovarian and Fallopian T...
    over 4 years ago
    RobinH's Avatar

    Hair is back

    Celebration

    hair came back about 8 weeks after treatments stopped!!!!!!!! My eyebrows and eyelashes were the last to fall out and the first to come back in.

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  12. 12
    • RobinH
    • Experience with Ovarian and Fallopian T...
    about 4 years ago
    RobinH's Avatar

    Anniversary

    Celebration

    It's been 18 months since my ovarian cancer diagnosis and 12 months since my BRCA diagnosis. I have used the past 6 months to share my experience with many groups in hopes of helping women take control of their health care decisions and to be aware of the symptoms.

    0 Comments
  13. 13
    • RobinH
    • Experience with Ovarian and Fallopian T...
    about 4 years ago
    RobinH's Avatar

    Procedure or Surgery

    This person has yet to add any details about this experience.

    Went as Expected: Not Specified
    Minimal Recovery: Not Specified
    Minimal Side Effects: Not Specified
    Minimal Impact to Daily Life: Not Specified
    0 Comments